Phenomenology Study of Self-Efficacy of Leprosy Patients Due to Social Stigma

1Magita Novita Sari, Joni Haryanto, Herdina Mariyanti


Background,Leprosy is a disease with stigmatization that affects the self-efficacy and behavior of sufferers. Social stigma can influence patient behavior in taking care of themselves both in the home and social environment. Self-efficacy oflepers needs to explore further to motivate clients to obtain an even better degree of health through their belief in regular treatment. Purpose: This study aims to explore the experience of self-efficacy level and behavior of lepersdue to social stigma. Methods: This study used qualitative research with a phenomenological approach. Data was collected by using in-depth interviews and group discussion forums on 12 participants in Madura island. This study useda purposive sampling technique and used the principle of immersion, which was positioning themselves as if it was part of the observed phenomenon. Results: This study revealed eight themes, those are the response of lepers, leprosy patients experiencing sadness, leprosy self-image, overview of disease, changes experienced, efforts to overcome problems, hope of lepers, and stigma of leprosy. Lepers had limitations by closing themselves because they are ashamed, afraid, and worried about the people's behavior in their environment. Conclusion: Stigma and discrimination in leprosy coming from the family and community become the main source of triggers for chronic sorrow in lepers and affect the self-efficacy of the sufferers.


leprosy, self-efficacy, chronic sorrow, stigma

Paper Details
IssueIssue 2