Psychological Stress and Life Satisfaction among Parents of Children with Autistic Spectrum Disorder
DOI:
https://doi.org/10.61841/qkggfm61Keywords:
Psychological Stress, Life Satisfaction, Children with Autistic Spectrum DisorderAbstract
Background: Parents of children with different disabilities have been found as a vulnerable group for significant levels of psychological stress; however, the stress is higher among parents caring for children with autism. Parents’ stress negatively impacts children in many ways; it influences the cognitive function of children, in addition to their behavior and the communication skills.
Aims: This study aimed to measure the level of psychological stress among parents of children with autistic spectrum disorder, as well as measuring the relationship between parenting stress and their life satisfaction.
Method: A descriptive correlational study was conducted on a convenience sample (N = 75) of parents of autistic children. The Arabic Version of Cohen’s Perceived Stress Scale and the Satisfaction with Life Scale were used to assess the level of stress and the level of life satisfaction among parents of children with autistic spectrum disorder (ASD)
Results: About 83% of parents have levels of psychological stress ranged between moderate to severe level and 36% of parents were dissatisfied with their lives. There was an inverse correlation between parents’ psychological stress and their satisfaction with life .
Conclusion and recommendations: Having a child with autism is extremely stressful as a result of the total dependency on families in all children’s daily life activities. Parents’ satisfaction level with life is linked to their level of psychological stress; consequently, parents’ stress can be an alarming sign against parents’ future health and lives, which increases the need for significant attention in terms of stress management programs designed for parents and new strategies of making autistic children as self-dependent as possible.
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References
Almadi, T., Cathers, I., Mansour, A. M. H., & Chow, C. M. (2012). An Arabic version of the Perceived Stress Scale: Translation and validation study. *International Journal of Nursing Studies, 49*(1), 84-89.
Bluth, K., Roberson, P. N., Billen, R. M., & Sams, J. M. (2013). A stress model for couples parenting children with autism spectrum disorders and the introduction of a mindfulness intervention. *Journal of Family Theory & Review, 5*(3), 194-213.
Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety, and depression among parents of children with autism spectrum disorder. *Journal of Psychologists and Counsellors in Schools, 14*(2), 151-161.
Bonis, S. (2016). Stress and parents of children with autism: A review of literature. *Issues in Mental Health Nursing, 37*(3), 153-163.
Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status, and satisfaction with services. *Autism, 8*(4), 409-423.
Chaaya, M., Osman, H., Naassan, G., & Mahfoud, Z. (2010). Validation of the Arabic version of the Cohen Perceived Stress Scale (PSS-10) among pregnant and postpartum women. *BMC Psychiatry, 10*(1), 111.
Cohen, S., Kamarck, T., & Mermelstein, R. (1994). Perceived stress scale. In *Measuring stress: A guide for health and social scientists* (pp. 235-283).
Croen, L. A., Najjar, D. V., Ray, G. T., Lotspeich, L., & Bernal, P. (2006). A comparison of health care utilization and costs of children with and without autism spectrum disorders in a large group-model health plan. *Pediatrics, 118*(4), e1203-e1211.
Goudie, A., Narcisse, M. R., Hall, D. E., & Kuo, D. Z. (2014). Financial and psychological stressors associated with caring for children with disability. *Families, Systems, & Health, 32*(3), 280.
Gupta, A., & Singhal, N. (2005). Psychosocial support for families of children with autism. *Asia Pacific Disability Rehabilitation Journal, 16*(2), 62-83.
Habib, H., Asmat, A., & Naseem, S. (2016). Parental satisfaction with life and perceived social support of parents of children with intellectual disability. *International Journal of Innovation and Scientific Research, 20*(2), 398-402.
Hasan, A. A. (2017). A descriptive study among children suffering from autism in Baghdad, Iraq. *Research Journal of Pharmacy and Technology, 10*(6), 1919-1923. https://doi.org/10.5958/0974-360X.2017.00336.5
Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. *Autism, 13*(3), 317-336.
Mandell, D. S. (2008). Psychiatric hospitalization among children with autism spectrum disorders. *Journal of Autism and Developmental Disorders, 38*(6), 1059-1065.
Mohamed, S. H., & Kazim, A. A. (2016). Assessment of psychological status of orphans in orphanages in Baghdad City. *Kufa Journal for Nursing Sciences, 6*(1), 121-129.
Neff, K. D., & Faso, D. J. (2015). Self-compassion and well-being in parents of children with autism. *Mindfulness, 6*(4), 938-947.
Nikmat, A. W., Ahmad, M., Oon, N., & Razali, S. (2008). Stress and psychological wellbeing among parents of children with autism spectrum disorder. *ASEAN Journal of Psychiatry, 9*(2), 65-72.
Obaid, M. A. S., & Al-Kadoumi, K. (2012). Family member needs of autistic children. *American Journal of Health Sciences, 3*(4), 291.
Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome: An application of the double ABCX model of family adjustment. *Autism, 9*, 191-212.
Pavot, W., & Diener, E. (2009). Review of the satisfaction with life scale. In *Assessing well-being* (pp. 101-117). Springer, Dordrecht.
Shimabukuro, T. T., Grosse, S. D., & Rice, C. (2008). Medical expenditures for children with an autism spectrum disorder in a privately insured population. *Journal of Autism and Developmental Disorders, 38*(3), 546-552.
Sung, M., & Park, J. (2012). The effects of a family support program including respite care on parenting stress and family quality of life perceived by primary caregivers of children with disabilities in Korea. *International Journal of Special Education, 27*(3), 188-198.
Wang, Y., Huang, Z., & Kong, F. (2017). Parenting stress and life satisfaction in mothers of children with cerebral palsy: The mediating effect of social support. *Journal of Health Psychology*. https://doi.org/10.1177/1359105317739100
Yorke, I., White, P., Weston, A., Rafla, M., Charman, T., & Simonoff, E. (2018). The association between emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents: A systematic review and meta-analysis. *Journal of Autism and Developmental Disorders, 48*(10), 3393-3415. https://doi.org/10.1007/s10803-018-3605-y.
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