Family Support and Challenges in Caring for Disabled Children in Malaysia: A Review of Literature

1Paramjit Singh Jamir Singha, Azlinda Azmana*, Syazwani Drania, Aznan Che Ahmadb, Mohd Iqbal Haqim Mohd Nora

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Abstract:

Purpose - This paper aims to review the literature related to family support and challenges in caring for disabled children in Malaysia. Design/methodology/approach - A systematic search of studies published between 1994 to 2019 in American Academy of Pediatrics, Oxford University Press, Cambridge University Press, Routledge, SAGE Online, Springer Link, Taylor & Francis Online, Humanities and Social Sciences Collections, Wiley Online Library and Health Collections was undertaken to examine the support and challenges faced by families in caring for children with disabilities. Findings - Studies have proven that family members faced a lack of psychological and structural support in caring for children with disabilities. This hasled to an increase of challengesincluding social exclusion, stigma and discrimination, lack of academic structure and unmet healthcare needs for children with disabilities. Addressing shortcomings is vital to allow these children to prosper as an important member of society and fulfil their potential as human beings. Originality/value - This paper is not currently under consideration, in press or published elsewhere. Effective collaboration between various agencies by providing more psychological and structural support for families and children with disabilities could enhance their social function and wellbeing. This can reduce negative implications on families and children with disabilities as well.

Keywords:

Support, Challenges, Families, Disability, Children with disabilities

Paper Details
Month5
Year2020
Volume24
IssueIssue 10
Pages2062-2073