Ethical and Social
Dilemmas Surrounding
Community-based Rehabilitation in Costa Rica
Julie M. Aultman, Ph.D
Enid Campos Villegas, M.D
Northeastern Ohio Universities College of Medicine (NEOUCOM)
Citation:
Aultman J.M. &
Villegas E.C. (2004). Ethical and Social Dilemmas
Surrounding Community-based
Rehabilitation in Costa Rica
International
Journal of Psychosocial
Rehabilitation.
8, .
Contact
Information:
Julie M. Aultman, Ph.D.
Northeastern Ohio Universities College of Medicine (NEOUCOM)
4209 State Route 44, PO Box 95, Rootstown, Ohio 44272,
United
States
330-325-6113 jmaultma@neoucom.edu
Abstract
The National Psychiatric Hospital in Costa Rica is the only
hospital that provides healthcare services for chronically, mentally
ill patients. One type of psychiatric service at the National
Psychiatric Hospital that specifically aims to meet patients’
biological, psychological, and social needs is community-based
rehabilitation (CBR). Patients receiving rehabilitative care at
the hospital are able to develop basic living and communicative skills
as a healthcare team helps patients learn how to live with their mental
disorders in a community outside of the hospital environment. Though
CBR is beneficial to the clinical and social welfare of patients and
their families, programs have not been fully developed and implemented
into the community due to a lack of resources and support by the
national healthcare system in Costa Rica, corresponding agencies, and
community leaders. The national healthcare system, known as the
Caja Costarricense de Seguro Social (CCSS), prides itself on its aim to
bring healthcare to everyone within the borders of Costa Rica.
However, this aim has not been realized partially due to Costa Rica’s
current economical problems associated with an unstable global economy;
financial constraints have greatly impaired the CCSS’s ability to
support programs that deliver healthcare beyond the basic needs of
patients. However, even those programs specifically designed for
meeting the basic needs of patients such as CBR for the mentally ill
are not being supported by the CCSS. Besides reasons of financial
instability, the CCSS may also be hesitant in supporting CBR because of
the program’s unknown effectiveness in helping patients. While
small-scale efforts at the National Psychiatric Hospital have been made
to predict the effectiveness of CBR, it remains unclear, from ethical
and social points of view, as to whether the positive effects outweigh
the possible moral dangers associated with the implementation of mental
health rehabilitation programs in Costa Rica.
Introduction
The focus of this paper is to explore the ethical and social dilemmas
associated with the deliverance of psychiatric care as a basic need in
Costa Rica through CBR. However, before these ethical and social
dilemmas are identified and examined through critical ethical analysis,
I first describe the history and current status of the National
Psychiatric Hospital of Costa Rica and the services it provides to
patients with debilitating acute and chronic mental disorders.
This research is based on interviews conducted with healthcare
providers, clinical and community observations, and reflections on the
ethical dilemmas surrounding community-based rehabilitation in Costa
Rica. This paper concludes with recommendations on how resources
should be made available to patients with mental illnesses and whether
community-based rehabilitation would be a beneficial program for Costa
Rica in light of some relevant ethical and social concerns.
Background: Costa Rica’s
National Psychiatric Hospital
The National Psychiatric Hospital of Costa Rica, known as Hospital
Nacional Psiquiatrico Presbítero Manuel Antonio Chapuí,
is located in Pavas, a town outside of the capital of San Jose.
The Minister of Justice, Dr. Carlos Durán, founded this hospital
in 1890 after noticing that many prisoners in the San Jose jails were
mentally ill and should not be incarcerated with criminals.
Instead of incarcerating the mentally ill, he built the National
Psychiatric Hospital to provide care and treatment. The National
Psychiatric Hospital was the first European-style asylum in Costa Rica,
which initially housed about 325 patients (Gallegos and Montero,
1999). The number of patients entering the hospital grew
exponentially throughout the 20th century and a dramatic shift from
asylum-based care to hospital-based care occurred in the mid-twentieth
century as professional healthcare teams began to take an interest in
caring for and treating patients with mental illnesses. To
provide mental healthcare services to the growing mentally ill
population, the hospital was moved from downtown San Jose to Pavas
(about 20 minutes outside San Jose) in 1974.
In 1975, community mental health care was integrated into the Costa
Rican mental health care system with much hesitation due to the fear
that community mental health would replace the mental hospital
(Gallegos and Montero, 1999). In 1978 the Pan American Health
Organization and World Health Organization (PAHO/WHO), along with the
Colombian government, met to discuss the needs of mental healthcare,
i.e., making mental healthcare accessible to all. They made
recommendations for developing and implementing programs with “wide
coverage, multidisciplinary teams, and coordinators” (Gallegos and
Montero, 1999, p. 27). Although it was evident that there was a
need for effective programs, there were several obstacles for
developing and implementing such programs. Gallegos and Montero (1999,
p. 27) write, “the obstacles facing Costa Rica derived from a lack of
will to promote changes and an insufficient number of psychiatrists in
public positions (i.e., planners and decision makers) interested in
implementing change.”
In 1982, several recommendations were presented to Costa Rican health
authorities for improving community mental healthcare throughout the
country. Besides coordinating mental health services with the
national health system, it was recommended that mental hospitals should
be replaced by community facilities. Additional recommendations
were made to set up a national mental health network, which addresses
all levels of prevention, along with the placement of psychiatric beds
in general hospitals (Gallegos and Montero, 1999). Since the
1980’s psychiatric beds have been set up in general hospitals in the
San Jose area, including the Children’s Hospital, but these beds are
for acute psychiatric patients and are centrally located in the capital
area, resulting in a seriously low percentage of psychiatric beds
throughout the entire country. Although there are some
developments moving toward a national mental health network that
addresses all levels of prevention, no such network is fully functional
at this time. Also, since recommendations were made, community
facilities have not yet been fully developed and implemented to improve
the mental health status of patients or as a way to replace The
National Psychiatric Hospital, which still remains the center of mental
health services. Unfortunately, because there is only one
hospital able to care for and treat both acute and chronically ill
patients, this limits access to the greater population in need of
mental health services. Nevertheless, the National Psychiatric
Hospital has made considerable efforts to provide the best care
possible given the lack of resources, e.g., medical technology,
clinicians, and the support of other healthcare professionals.
Currently (2002-03) the National Psychiatric Hospital has 811 beds and
in 2001 had about 3900 discharges. Of the 811 beds, 400 are used
for chronically ill patients, who permanently live at the hospital and
the remaining beds are used for acute patients who stay for a short
period of time (the average stay is 20 days). The hospital provides
care and treatment to men, women, adolescents, pediatric patients, and
geriatric patients. Patients are typically received in the
emergency room with an observational unit, and those patients with
acute disorders are then admitted to the intensive care unit so
clinicians can determine the extent of the patient’s mental and/or
physical condition. Although women, men, adolescents, and the
elderly are separated into different areas of the hospital, the general
organization of the hospital is based on the needs of patients and the
level of ease in caring for these patients.
The National Psychiatric Hospital is divided into six units or
wards. The first two wards, Wards 1 and 2, are used for acutely
ill, easily handled patients. Wards 3 through 6 are used for
patients who are difficult to manage and who require intensive
rehabilitation conduct programs. Ward 5, also referred to as
“transitional home”, contains chronic patients who are self-sufficient
and enrolled in a therapy program called “Daily Life”. The “Daily
Life” program teaches and guides patients in activities such as
cooking, shopping, dressing and bathing. Once the patients are
able to complete daily life tasks and manage their lives within the
hospital they are transferred to group homes, or independent houses
known as “Las casitas”, which are located behind the hospital
grounds. There are also public and private rehabilitation centers
where patients from ward 5 can go to for further psychiatric care and
support. If a patient is unable to move into a group home
or one of the country’s rehabilitation centers, then they must remain
in the hospital until a place is available. However many patients
who are able to live outside of the hospital cannot due to lack of
space and resources.
Although the National Psychiatric Hospital does not have regular access
to current medical technologies, it does have the support of a
laboratory, electroencephalogram (EEG), and an electro convulsive
therapy unit, which provides more than 6000 therapies a year (about
20-25 per day). There is also a medical unit, providing care and
treatment of physical disorders by internal medical physicians.
As well as in-patient services, there are also outpatient services
handling more than 1000 patients and offering a variety of individual
and group therapy programs. One program, called “Daytime
Hospital” gives patients the opportunity to develop skills to do simple
tasks, i.e., producing merchandise that is sold to the public such as
piñatas and articles of clothing.
Methods: Observations and Analysis
To understand the key social and ethical dilemmas involving
community-based rehabilitation for mentally ill patients living in
Costa Rica, I carried out participant observation in the summers of
2002 and 2003 at the National Psychiatric Hospital; I observed what
healthcare teams and their patients experience while working and living
within and outside of the hospital environment. To support my
observational findings I interviewed clinicians and nurses working at
the National Psychiatric Hospital and discussed with area families,
including two families I lived with, their perceptions of mental
disorder and the benefits and burdens of CBR. I also reviewed
recent proposals by clinicians at the National Psychiatric Hospital for
the initiation and development of mental healthcare programs in Costa
Rica. My analysis of the ethical and social dilemmas
surrounding CBR is supported by a review of recent literature on
community psychiatry and rehabilitation programs for physically and
mentally disabled persons around the world.
Findings: Developments toward
Community-based Rehabilitation
Patients at the National Psychiatric Hospital receive medications,
psychotherapies, and electro convulsive therapies depending on the type
of mental disorder they have and on the frequency of symptoms
associated with the disorder. Although these methods are useful
for meeting some of the biological and psychological needs of patients,
community-based rehabilitation programs have the potential to meet all
of the biological, psychological, and social needs of patients.
These social needs include providing spiritual support, acknowledging
cultural differences, developing communicative and other social skills
for interacting with others, and creating a network of friends and
co-workers who view and respect the patient as a person, and not as a
disease or illness. As Drake, Green, Mueser, and Goldman (2003,
p. 434) explain, while somatic and psychosocial treatments focus on
controlling illness, rehabilitative interventions “primarily aim toward
improving functioning and quality of life rather than reducing the
symptoms of the illness.”
Developments have been made to integrate hospital-based care with
community-based care as a way to show the CCSS and community leaders
that community mental health is beneficial for treating patients and
meeting all of their biopsychosocial needs. Instead of
institutionalizing mentally ill patients in a static, clinical
environment, the philosophy of the National Psychiatric Hospital is to
allow patients to develop important daily life skills, recognize and
accept their physical and mental disabilities, and get effective
medical treatment so as to rehabilitate them for community integration.
In helping patients develop important daily life skills, healthcare
professionals at the National Psychiatric Hospital have implemented a
task-based program known as “Daytime Hospital” where patients can learn
important skills such as reading/writing, sewing, woodworking and
working with crafts (some of which can be sold to buyers outside of the
hospital community). Daytime Hospital is run by the CCSS and
functions as a halfway rehabilitation center. Patients are
supervised by social workers and occupational therapists though the
majority of assistance and supervision is provided by volunteers.
Similar halfway rehabilitation centers are located in Desamparados,
Hatillo, Naranjo, and Alajuela, (located near San Jose) and are
supported by the community, the CCSS, and the National Rehabilitation
Center, a publicly funded organization that has made successful
attempts to implement these community-based programs throughout Costa
Rica. Most of the patients working at the halfway rehabilitation
centers outside of the National Psychiatric Hospital have supportive
families; they have the freedom to work during the day at the centers
and then leave for home in the afternoon.
Clinicians, social workers, therapists, and volunteers working at
these halfway rehabilitation centers believe that having the
opportunity to learn skills not only builds patients’ self-esteem but
also gives them the freedom to gain some control over their
lives. Those who contribute to these programs oversee
the work that is done by the patient, but more importantly, are able to
guide and provide emotional and psychological support to the patient
when needed. Unfortunately, the “Daytime Hospital” program, like
many CBR programs, lacks significant financial and clinical resources,
and because of this, some of the halfway centers have closed due to a
lack of funding, thus forcing patients back into their homes or out on
the streets.
In another ward of the hospital, several areas are designed for the
Daily Life program, a program where healthcare professionals help
patients develop a sense of independence by teaching them important
personal care skills. Patients learn how to shop for food and
clothing, cook, bathe and dress themselves. These basic skills
are viewed by healthcare professionals as therapeutic for some
patients, e.g., calming the anxious or emotionally disturbed patient,
and providing a critical step for others who are able to take on the
responsibilities of daily living in a community.
Although healthcare professionals at the National Psychiatric Hospital
are preparing patients for community integration through their basic
skills programs, it remains unclear as to whether the focus should be
on CBR for delivering optimum care to mentally ill patients. The
publicly-funded National Rehabilitation Center, along with the CCSS,
have tried to develop and implement various programs, such as “The
Daytime Hospital” program, but since there is a lack of adequate
resources for implementing and expanding these programs, making CBR
central to mental healthcare in Costa Rica, these programs are
insufficient for delivering optimum care to mentally ill
patients. Unfortunately several hospitalized patients (an
estimated 200 patients) are ready to live and work within their
communities, but they may face a lifetime of hospitalization if they
cannot get the help they need through CBR programs that are financial
stable and rich in resources. However, as I have found, in order
for CBR to be successful in countries such as Costa Rica, financial
stability and resource dependability are not enough for helping
patients with mental illnesses. In determining whether Costa Rica
is ready for CBR, one must take into account several ethical and social
considerations. Several questions need to be answered. For
example, is CBR more or less restrictive than involuntary
hospitalization (Davis, 2002), are communities willing to support CBR
programs even when members fear mental illness, will healthcare
professionals and volunteers protect the patient’s right to privacy,
etc.?
Is Costa Rica Ready for CBR?
In looking at community-based psychiatry, Szmukler (1999, p. 363)
recognizes that several developing countries, such as Costa Rica, are
dramatically moving from hospital based programs to community based
rehabilitation programs. In this shift to community-based
psychiatry, e.g., CBR programs, multidisciplinary approaches in care
and treatment are identifiable; such approaches in treatment recognize
that patients with mental diseases are biological, psychological, and
social persons.
When looking at community psychiatry there is a clear shift from
institutional based medicine to community based medicine where there is
an expansion in the network of caregivers and services and a
development in the dynamic relationship between the medical community
and the community at large. Szmukler (1999, p. 364) writes that
community based psychiatry “aims to establish a network of services
offering crisis interventions continuing treatment, accommodation,
occupation, and social support which together help people with mental
health problems to retain or recover social roles as close to normal as
possible for them.” Although a team of physicians, nurses, and
other healthcare professionals may work with patients in the hospital
setting, the number of non-professional and professional caregivers
increases once the patient enters the community. Friends, family,
social workers, governmental and non-governmental organizations, group
home personnel, employers, etc. may all contribute to the overall care
of the patient, including his or her biological, social, spiritual, and
cultural needs. It is in community psychiatry where the
network of healthcare providers is as complex as the environment in
which care is delivered.
Besides providing psychotropic drugs and psychological interventions,
such as psychotherapy, CBR programs are designed to integrate patients
into a community where they can work towards regaining or developing
basic living skills. Although these basic living skills can be
taught within a hospital, as I observed at the National Psychiatric
Hospital, it is not until the patient is outside of the controlled
environment of the hospital when he or she can apply and fully
understand the implications for learning basic living skills.
CBR can have a profound effect on patient’s physical, psychological,
and social wellbeing; patients develop a sense of independence and
learn to control their lives without letting their mental disorders
control them. Although, reaching goals of independence and
self-sufficiency can be a difficult process for both patient and
community even when CBR programs are in place and fully
functioning. Contributing to this difficult process are
several social and ethical dilemmas surrounding CBR. In
highlighting these social and ethical dilemmas it becomes clear that
CBR may not, given the current financial status of CCSS and the
unsustainable nature of CBR programs in general (Turmusani, Vreede, and
Wirz., 2002), be an appropriate course of action for Costa Rica.
Ethical and Social Dilemmas
Surrounding Community-based Rehabilitation
While the shift from hospital-based medicine to community-based
medicine may benefit individual patients’ health there are some
possible concerns to consider. First, as Szmukler explains,
the shift from hospital to community-based medicine may exert pressure
to discharge patients quickly (Szmukler, 1999). Although the goal
of this shift in medical practice is to rehabilitate patients for
community living, this goal can only be achieved with careful planning
and monitoring. Patients ought to meet and maintain standards set
by the healthcare institution(s) prior to their community integration,
the role of healthcare professionals and others involved in CBR should
be one of “allies and resources”, and the community should be well
informed of CBR and related policies prior to their participation
(Turmusani, Vreede, and Wirz 2002). Community mental health may
become an unachievable or unrealizable goal if responsible community
health leaders do not properly plan, deliver, and evaluate CBR
programs. For example, if community health leaders do not provide
information about procedures, possible obstacles, and the goals of CBR
in a clear and comprehensible manner, especially to
patient-participants, CBR programs are subject to failure. Singh
(2000, p. 414) writes that community mental health teams are often
criticized for their “ambiguous and overambitious aims, and their
tendency to neglect people with the most challenging health- and
social- care needs”. If community mental health workers,
including clinicians, community leaders, social workers, nurses, and
others, are unwilling to work together as a team and are not fully
committed to the careful planning and implementation of CBR, the
program is subject to failure and the patient’s health is in
jeopardy. The community mental healthcare setting is a
resource-poor system (Christensen, 1997 p. 6) and without a
team-approach in delivering care, clinicians may carry the burden of
assuming the role of gatekeeper, or worse yet, fail to meet their
patients’ needs.
One problem for Costa Rica is overambitious mental healthcare teams and
not-so-ambitious communities who may be reluctant to participate and
work together as a team toward CBR for persons with mental
illnesses. Even though the culture of Costa Rica is that of
close-knit families and communities whose major concern is their
health, Costa Ricans generally have a laid back attitude when it comes
to getting things done, including the development and implementation of
healthcare programs. In some respects this attitude can be viewed
as a healthy one as they experience less stress and anxiety in trying
to meet deadlines, keep appointments, and satisfy their customers,
friends, or family. However, this attitude can be especially
problematic after a project or program has been initiated; it takes a
long time for a project or program to be fully implemented and
assessed. Thus, in order for CBR to be a significant part
of mental health care in Costa Rica, healthcare professionals and
community members need to be willing to participate and work together,
and work with a strong commitment to improve patients’ mental health
through rigorous CBR program development and assessment.
Another problem that often occurs when mental healthcare teams are
overambitious is improper outpatient treatment; patients may be coerced
to live in the community or discharged too quickly from the
hospital. If patients are coerced to live in the community as an
alternative to hospitalization, paternalistic healthcare teams are
interfering with the patient’s freedom to choose and act with
self-determination regardless if CBR will be the best course of action
to meet the healthcare needs of the patient. Christensen (1997,
p. 8) writes, “In essence, the concept of paternalism represents a
classic example of a conflict between meeting a client’s needs (as
determined by the provider) versus respecting a client’s rights to
self-determination. Involuntary commitment, forced medication,
and coerced out-patient treatment are some modes of psychiatric
practice viewed as paternalistic.” Unlike involuntary or
coerced hospitalization and forced medication (where the justification
to act paternalistically is to protect the patient from harming
himself/herself and others), if a patient is coerced or discharged too
quickly there is no moral justification. The patient is wrongfully
forced into an unconfined environment that will most definitely harm
rather than protect him or her. Not being able to cope with daily
living outside of the hospital may lead to further physical and mental
distress, possibly making the patient feel like a failure as he or she
reverts to abnormal thoughts and behaviors experienced and expressed
prior to rehabilitation. Having been institutionalized for an
extended amount of time, combined with having a debilitating mental
disorder, the patient’s first experiences outside of the institution
can be especially detrimental to his or her psychological and physical
well being if he or she has not been properly prepared to live in an
often disorderly and confusing community environment.
A related concern regarding CBR is that rehabilitation is not a
permanent solution for delivering the kind of care or treatment the
patient needs. This may be an important concern if rehabilitation
is viewed as a single goal – helping the mentally ill person to live
within a community. If a patient can learn to cook, clean, dress,
and work while receiving necessary medical treatments outside of the
hospital, the patient appears to be getting the type of care he or she
needs. However, this type of rehabilitation program, focusing on
just the medical and social needs of the individual is subject to
failure and is not a permanent solution. A rehabilitation program
that can meet the psychological needs of the patient as well as the
social and medical needs will less likely fail. An effective
rehabilitation program recognizes the changing psychological needs of
the patient as he or she integrates into a community.
If the patient appears to be ready for discharge, that is, has shown
considerable progress and success in his or her basic skills programs
and has begun to develop interpersonal skills that would assist the
patient in adapting to a new environment, then CBR should be an option
for this patient. However, the difficulties lie in determining
which skills are necessary for living outside of the hospital and when
a patient has sufficiently developed those skills. Furthermore,
once a patient has been discharged, how will healthcare providers,
along with community members, adequately help the patient to maintain
those skills? These difficulties can be resolved with careful
planning and assessment, though many countries like Costa Rica do not
have the resources and management to do this, which brings us to a
second dilemma for CBR: there are not enough healthcare providers to
assist in rehabilitation programs.
Many Patients, Few Resources
Unfortunately developing countries such as Costa Rica do not even have
enough healthcare providers to help all people receive basic care,
especially those with mental disorders. If CBR
programs were to be implemented in Costa Rica without having enough
healthcare teams to assist both hospitalized and non-hospitalized
patients, such programs would fail; patients living in the hospital or
out in the community would not receive adequate care.
Because there are not enough resources currently in Costa Rica to
implement effective CBR programs, measures ought to be taken to either
acquire these necessary resources, e.g., more psychiatric teams, or
forgo rehabilitation programs until resources can be made
available. Unfortunately, regardless of having a national
healthcare system, the people of Costa Rica are not receiving adequate
mental healthcare and the programs that can provide more and better
mental healthcare services cannot be implemented due to a lack of
resources. This, I believe, is partially due to the division
between physical and mental illnesses.
Although many of the psychiatrists in Costa Rica practice Western
medicine with the view that physical and mental illnesses are not
easily separable, the CCSS does not view mental healthcare as a
priority, as evidenced by the lack of hospitals, psychiatrists, and
technology needed to diagnose and treat patients with mental
illnesses. While Costa Rica has made great strides in delivering
healthcare to its citizens, the focus is on basic and preventative care
through better education and country-wide immunization programs.
Success has been measured by low infant mortality rates, a decline in
childhood diseases and diseases associated with poor nutrition, and
life expectancy rates equivalent to first order nations such as the
United States and Japan. However, there has been a significant
rise in spousal and child abuse and drug and alcohol related
diseases. Although these problems do not go unnoticed, they are
not always viewed as physical and mental healthcare problems that can
be identified and treated by community intervention and support.
These types of problems may continue to rise if mental healthcare is
viewed as a separate and distinct form of healthcare and if there is a
lack of will to provide mentally ill patients with the resources they
need.
Public Fears
Another dilemma for healthcare professionals,
patients, and the community are the public fears surrounding mental
illness. Depending on the cultural background of the community
these fears may vary. Some members of the Costa Rican community
may believe that mental illness is a distinct, contagious entity, which
should be contained, i.e., mentally ill persons should be confined to a
medical institution to prevent the spread of the disorder.
Others believe that the mentally ill persons pose a risk to the
community either by harming themselves or others within the community
and claim to have witnessed public displays of aggression and
self-mutilation, e.g., “A crazy [autistic] man banged his head against
a stone wall repeatedly until he bled to death” (story told by a woman
from San Jose, 2003). Stories about mentally ill patients
murdering innocent bystanders or making obscene public gestures are not
uncommon. Many of these stories are fabricated and are
intended to scare their readers and listeners in the same manner as
ghost stories. The greatest fear lies in not the fear of
being harmed by someone with a mental illness but the fear of having to
care, protect, and accept the mentally ill person. Though cases
of mentally ill patients inflicting harm on themselves or others are
rare, by educating and training community members and patients about
mental disorders and the persons who have them fears can be lifted and
possible harms can be prevented. Szmukler (1999, p. 374)
explains, “Fear of the mentally ill is omnipresent. Care in the
community treads a fine line. If it is not managed successfully
‘there is a danger that progress over recent decades in emphasizing the
individuality of patients and affirming their rights (and
responsibilities) within a therapeutic relationship could be
compromised by early resort to unnecessary inpatient supervision and
coercive models of care”.
Even though the public may be supportive of CBR and have little or no
fears about having mentally ill patients integrate into the community,
many community members may not understand their role in helping the
patient acquire the freedom and dignity that s/he deserves.
Some community members may believe that ‘helping’ means monitoring the
patient’s every move, fixing any mistakes that are made by the patient,
or doing things that the patient is capable of doing for
himself/herself, e.g., preparing meals, cleaning, and so forth.
Although these members of the community believe they are helping, they
are infringing upon the patient’s rights and responsibilities and are
doing more harm than good by not permitting the patient to learn from
his or her mistakes or by not allowing the patient to develop a sense
of pride by completing his or her own daily tasks.
Other members of the community may ignore or shun the patient, not
because they are fearful of the patient and his or her illness, but
because they do not know how to help. This too is problematic for
the patient because s/he may feel ashamed, believing s/he is doing
something wrong, or embarrassed that s/he is different from other
members of the community. Again, to eliminate the stigmas
associated with mental illness and to respect the patient’s dignity and
self-worth, the community needs to be informed of how to help patients
without infringing on their rights and responsibilities.
Patient Autonomy and Confidentiality
As briefly stated above, another difficulty with CBR
involves the possible disregard for patient autonomy, which may result
in the breakdown of trustful healthcare team-patient
relationships. Recognizing autonomy is recognizing the inherent
worth of the patient – the patient as a person. This means that,
as a person, the patient is self-determining and should be permitted to
decide what is in his or her own best interests. Patient autonomy
is critical for developing a symbiotic relationship with healthcare
professionals where the patient can play an active role in medical
decision-making and exert some control over the treatment process
without manipulation or coercion. Although autonomy may be
compromised if the patient has a debilitating mental disorder and is
unable to make rational decisions, one should not view the patient as a
being with no inherent worth or interests. If a patient is
unable to fully understand and make rational decisions, healthcare
providers should make an effort to relay pertinent information in a way
the patient can understand and respond to through his or her expression
of beliefs, values, and opinions. In cases where CBR has
been implemented in developing societies, patients are respected as
persons and generally have more autonomous control over their lives as
they become fully integrated into the community than if they were to
live in a hospital setting. However, patients may not have
control over every aspect of their lives, especially when it comes to
healthcare professionals disclosing their private information to third
parties, including community members, employers, and agencies
participating in CBR.
Information between healthcare professionals and patients is, as a
general rule, kept confidential to maintain a trusting therapeutic
relationship. However, there are circumstances in which private
information may be made public. It may be necessary to divulge
private information about a patient if not doing so will result in the
harm of the patient or others. For example, in community based
rehabilitation it may be necessary to divulge private information,
e.g., the patient has a history of violence towards himself or herself,
to protect the patient and/or community. With such information
community members who are assisting patients in their daily lives can
prevent the patient from harming himself or herself. The
paternalistic act of divulging confidential information to third
parties may be viewed as necessary, i.e., to protect and look out for
the best interests of the patient. On the other hand, the
disclosure of private information about a patient can lead to
unwarranted violations of privacy, thus compromising the psychological
well-being of the patient, e.g., making him/her feel inferior,
different, etc.
CBR is a way to provide care through a much larger network of both
professional and non-professional healthcare providers. And, as
the network expands, confidential information may be passed along
without the patient knowing. However, patients may not know that
their private information has been disclosed to third parties,
including employers, neighbors, and agencies, and are possibly
subjected to unfair treatment as their conditions become exposed.
And, since the patient does not know and has not given prior consent
for private information to be released to a third party, s/he cannot
act as a self-determining agent and is thus, disrespected as a
person. Even in cases where breaching confidentiality is
necessary for protecting the patient and others from harm (i.e.,
Tarasoff Case), it should be clearly explained to the patient that such
private information may be disclosed to third parties and reasons why
disclosure is important.
Conclusions: Recommendations for Mental Healthcare in Costa
Rica
The future of CBR in Costa Rica depends on whether enough resources can
be provided, including a sizable increase in the number of
psychiatrists, the willingness of the community to help patients, and a
better understanding of mental illness and the patient as a
person. In order to provide enough resources to fully implement
CBR, mental healthcare must be viewed as a priority. To date,
mental healthcare in Costa Rica is not a priority for the CCSS even
though the leading healthcare problems in the country are related to
mental illness (e.g., spousal and child abuse and drug and alcohol
abuse). Given the current state of Costa Rica’s mental healthcare
system, there is a greater need to focus on delivering mental
healthcare services to all who could do with of such services.
And, to do this, efforts to expand clinical resources, especially the
number and availability of psychiatrists, should be made prior to any
further developments of CBR. Until there is an adequate number of
mental healthcare professionals who can work with community leaders and
patients toward a better system of biological, psychological, and
social care, along with an understanding of the social and ethical
obstacles healthcare teams and patients may face, CBR should be viewed
as a future goal. However, the steps Costa Rica has taken toward
this goal should be acknowledged as important ones; by creating various
programs such as “Daytime Hospital”, and seeing both the positive and
negative effects of these programs, Costa Rica is beginning to
understand the clinical, social, and ethical needs of her community and
establishing a path toward an even better system of health.
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