The EMILIA project: The impact of a lifelong learning intervention
on the sense of coherence of mental health service users.
Christopher A. Griffiths BSc [Hons]
Researcher
Department of Mental Health, Middlesex University, London, UK
126 Broad Street, Coventry, CV6 5BG, UK.
Citation:
Griffiths, C.A. (2009). The EMILIA project: The impact of a lifelong learning intervention on the sense of coherence
of mental health service users.. International
Journal of Psychosocial Rehabilitation. Vol
14(1). 35-49
Abstract
Objectives:
The EMILIA project provides formal learning and employment
opportunities to mental health service users. This study evaluates this
intervention in terms of its effect on participants’ sense of coherence
(SOC).
Method:
This study employed a within subjects design with a measure of SOC and
a qualitative assessment at follow-up. A combined analysis was employed
to establish a deeper understanding of the quantitative results and to
investigate factors, mechanisms and processes of the project associated
with SOC and recovery.
Results:
Among the 22 participants there was a significant increase in SOC.
Qualitative analysis revealed factors, mechanisms and processes linking
lifelong learning, recovery and SOC.
Conclusions:
The findings suggest that projects that provide lifelong learning and
employment opportunities can increase participants’ ability to cope,
adapt and recovery. The study adds to evidence for funded provision of
formal learning and employment opportunities for mental health service
users
Conflicts of interest: None.
Key words: sense of coherence, recovery, lifelong learning, social inclusion, empowerment.
Introduction
Context
EMILIA
(Empowerment of Mental Illness: Lifelong learning, Integration and
Action) is a Framework 6 European Union project, funded at €3.4 million
over a four and a half year period. The main aim of the EMILIA project
is to facilitate social inclusion and empowerment of its mental health
service user (MHSU) participants through specifically designed lifelong
learning and employment opportunities.
Sense of Coherence
Aaron
Antonovsky’s (1923-1994) work formed part of the movement in medicine
towards studying the origins of health. His sense of coherence (SOC)
theory relates to the adaptive capacity of humans. Antonovsky defined
SOC as “a global orientation that expresses the extent to which one has
a (A) pervasive, enduring, though dynamic feeling of confidence that
stimuli deriving from one’s internal and external environments in the
course of living are structured, predictable, and explicable; (B) the
resources are available to one to offset the demands posed by these
stimuli; and (C) these demands are challenges worthy of investment and
engagement” (Antonovsky, 1987, p. 19). He labelled these components A)
coherence, B) manageability, and C) meaningfulness. The development of
the meaningfulness component was greatly influenced by the work of
Frankl (1978; 1992). SOC can be regarded as a crucial element in the
structure of an individual’s personality that facilitates the coping
and adaption process (Antonovsky, 1979; 1987).
Those who are
experiencing mental disorder face constant challenges and setbacks,
both small and large, and the success of their recovery, at a
biological, psychological and social level, is determined by their
ability to cope with, overcome and recover from these challenges and
setbacks. This ability depends on, according to Antonovsky’s theory,
the strength of an individual’s SOC which is determined by an
individual’s general resistance resources (GRRs) and their effective
deployment. GRRs can be physical (e.g., a strong physic, strong immune
system, genetic strengths), artefactual (e.g. money, food, power),
cognitive (e.g., intelligence, education, adaptive strategies for
coping), emotional (e.g., emotional intelligence), social (e.g.,
support from friends and/or family), or macrosocial (e.g., culture and
shared belief systems). There has been extensive research in to the SOC
concept (e.g. Bengtsson-Tops & Hansson, 2001; Carstens &
Spangenberg, 1997; Cederblad & Hansson, 1996; Eklund, Hansson,
& Bengtsson-Tops, 2004; Johnson, 2004; Volanen, Lahelma,
Silventoinen, & Suominen, 2004; Volanen et al. 2006; Wolff &
Ratner, 1999). Feigin & Sapir’s (2005, p. 63) literature review
found that “the concept of SOC has a broad theoretical base and a
growing and impressive body of empirical evidence supporting its
utility”.
EMILIA, recovery and sense of coherence
Lifelong
learning and mental health recovery can be viewed as inseparable
interrelated processes (Griffiths & Ryan, 2008). This is because
mental disorder brings change to an individual’s life and new learning
is required to enable that individual to cope and adapt in the recovery
process. Lifelong learning and recovery can be involved in a cycles of
development and progression (Feinstein & Hammond, 2004). Learning
can aid recovery, and the process of recovery can lead to new learning.
The interconnections between these two
concepts contribute to the research prediction that exposure to the
EMLIA lifelong learning project would increase the ability to cope,
adapt and recover (capsulated here as SOC). Eriksson & Lindström
(2007) stated that the SOC concept can be applied to the process of
learning – that the learning process is facilitated when it is
structured, comprehensible and meaningful: “The salutogenic
framework facilitates the learning process and simultaneously promotes
health” (p. 941). The qualitative analysis aspect of this article aims
to investigate factors, mechanisms and processes linking lifelong
learning, recovery and SOC in the EMILIA project. It also seeks to
understand any changes in SOC from baseline to follow-up.
A
review of research literature reveals that there are many factors,
mechanisms and processes involved in formal learning that could lead to
an increase in SOC. Hammond (2004, p. 551) found that learning can have
positive impact “upon psychosocial qualities; self-esteem,
self-efficacy, a sense of purpose and hope, competences, and social
integration.” Research into specific examples of formal learning for
those with mental disorder has found that they can bring benefits on a
wide variety of measures, for example, improvements in measures of
coping skills, stress management, goal setting, quality of life, and
well being (Griffiths, 2006).
Formal lifelong learning can
contribute to increased comprehensibility, manageability and
meaningfulness and hence strengthen SOC (Landsverk & Kane, 1998). A
direct positive effect of formal learning on individuals’ SOC has been
shown by Suominen, Blomberg, Helenius, & Koskenvuo’s (1999) study
which found that the degree of occupational training was strongly and
positively correlated to SOC. SOC can be strengthened by factors such
as teaching and reinforcing coping skills, the facilitation of social
support and by enabling individuals to identify, access, and mobilize
resources that are available to them (Landsverk & Kane, 1998).
EMILIA,
as a lifelong learning and employment opportunity project, has the
potential to increase the SOC strength of its participants through
increases in a sense of hope, meaning, well being and self-esteem (Borg
& Kristiansen, 2008) and also through social aspects (Antonovsky,
1979; 1987). Social aspects include interpersonal support from study
peers, opportunities to express and validate concerns and questions,
and being able to understand that you are not alone in your experience
of mental illness (Ascher-Svanum & Whitesel, 1999). It also has the
potential to increase SOC through increased empowerment (NIACE, 2004;
Frankl, 1992), through the development of new areas of interest (NIACE,
2004), increased purpose in life by defining and setting personal goals
(Frankl, 1978; 1992), and increased structure in life (Antonovsky,
1979; 1987). What's more, the service users who help deliver the
learning modules can act as role models, allowing an individual service
user to see that others can cope with and be successful despite their
mental illness and this can have a positive effect on SOC (see
Ascher-Svanum & Whitesel, 1999).
The components and
practical delivery of the EMILIA learning modules can also had the
potential to increase participating individual’s SOC. For example,
EMILIA sought to meet participant expectations and adapt to them; it
promoted peer to peer support; allowed learners to express and validate
their concerns and questions; tried to create a cohesive learning
group; employed a format that enabled participant interaction; sought
to develop effective learner teacher relationships; employed teachers
who believed in the learning potential of their students and who tried
to instil hope and belief and be sensitive to the participants learning
needs (see Ascher-Svanum & Whitesel, 1999; Emer, McLarney, Goodwin,
& Keller, 2002; Hayes & Gantt, 1992; Mather & Atkinson,
2004).
The EMILIA learning intervention developed learning
goals that were attainable to help facilitates success (Koplewicz &
Liberman, 2003). It did this by allowing participants to complete
assessment at Middlesex University levels from zero (below 1st year
undergraduate) to level 4 (masters). Furthermore, it sought to provide
solutions to everyday concrete practical problems of the participants
through content grounded in reality of participant’s existence - so
that the modules connected with participant’s lives and goals
(Koplewicz & Liberman, 2003).
It is difficult to achieve a
load balance (which Antonovsky described as essential in strengthening
SOC) in a group that has various types and severity of mental disorder
and different levels of educational attainment, ability, and
experience. Of crucial importance in respect to the underload/overload
balance is the learning support that the EMILIA project provided its
participants. There was a high tutor to student ratio and the EMILIA
tutors actively sought to identify students requiring additional
support, clarification and counselling during the training sessions.
In
conclusion the research prediction was that participation in the EMILIA
project will cause a significant strengthening in the SOC levels of
participants and that qualitative analysis will reveal insights into
the factors, mechanisms and processes linking lifelong learning,
recovery and SOC.
The intervention
The EMILIA
project intervention provided a set of three core learning modules and
one additional learning module, a certificate of completion, learning
support, the option of academic assessment to obtain Middlesex
University credits and opportunities and training for paid employment
at Middlesex University (teaching and assessing student mental health
nurses). The titles of the core learning modules were ‘Building on
Strengths and Personal Development Planning’, ‘Empowering People in
Recovery’, and ‘User Leadership and Advocacy’. The additional module
was entitled ‘User Research Skills’. All teaching was conducted by
MHSUs who were leaders in the mental health community.
Research Methods
Combined qualitative and quantitative analysis
A
combined quantitative and qualitative approach was adopted. The
employment of a combined qualitative-quantitative approach meets the
recognition among many researchers of the need to establish the
qualitative grounding of empirical research in order to increase its
scientific value (see for example, Henwood & Pidgeon, 1992).
Qualitative analysis
This
research utilised a deductive ‘top down’ approach and in doing so it
employed theoretical thematic analysis. Thematic analysis is a method
for identifying, discovering, analysing and reporting patterns (themes)
within data. A seven phase analysis in a recursive process based on the
guidelines provided by Braun & Clarke (2006) was employed. The
results of this analysis were used to explore the effects of the EMILIA
experience in relation to SOC theory.
A priori themes identified
Eight
lifelong learning related themes were identified through a literature
review before the research study was conducted: learning,
employment, social networks, success, failure, mental health issues,
goals, and motivation.
Design
The study employed within-subjects pre- and post-test design.
Participants
There
were 22 participants, 8 males and 14 females (see table 1). All
participants had a current diagnosis of mental disorder, at least three
years of using mental health services and did not have ‘real world’
employment (regular paid work of more than 18 hours a week) or a
diagnosis of learning disabilities or dementia. Their ages ranged from
28-62 years, with an average age of 46. The number of years of contact
with mental health services ranged from 3 to 36 years, with an average
of 14 years. All of the participants were living in North London, UK at
the time of the intervention.
The majority of the participants
(over three quarters) who provided information for the follow-up
measures completed the entire set of the core learning modules and over
half completed the additional learning module. At the time of follow-up
only two of participants had started taking up the paid opportunities
offered through the EMILIA project.
Table 1.
Participant information
|
Name (names changed to protect identity)
|
Mental health
disorder diagnosis
|
|
Age
|
Sex
|
Marital status
|
Years of
contact with mental health services
|
Country of
birth
|
|
Alvita
|
Bipolar
disorder
|
|
47
|
F
|
Single
|
7
|
UK
|
|
Cathy
|
Personality
disorder + depression + anxiety
|
|
46
|
F
|
Married
|
29
|
UK
|
|
Dawoh
|
Bipolar
affective disorder
|
|
51
|
M
|
Married
|
11
|
Sierra Leone
|
|
Eric
|
Schizophrenia
|
|
39
|
M
|
Single
|
18
|
UK
|
|
Freya
|
Clinical
depression
|
|
41
|
F
|
Single
|
4
|
UK
|
|
Grace
|
Schizoaffective
disorder
|
|
41
|
F
|
Divorced
|
16
|
UK
|
|
Hilda
|
Bipolar
affective disorder
|
|
37
|
F
|
Single
|
8
|
UK
|
|
Isabel
|
Bipolar
disorder
|
|
40
|
F
|
Single
|
12
|
UK
|
|
Jameela
|
Bipolar
disorder
|
|
28
|
F
|
Single
|
3
|
UK
|
|
Kay
|
Schizoaffective
disorder
|
|
43
|
F
|
Single
|
23
|
UK
|
|
Lokesh
|
Schizophreniform
illness
|
|
55
|
M
|
Married
|
12
|
Pakistan
|
|
Maria
|
Anxiety
|
|
48
|
F
|
Single
|
6
|
UK
|
|
Norris
|
Bipolar
affective disorder
|
|
35
|
M
|
Single
|
9
|
UK
|
|
Olive
|
Premenstrual
dysphoric disorder (PMDD)
|
|
61
|
F
|
Married
|
36
|
UK
|
|
Paulette
|
Bi-polar
affective disorder
|
|
48
|
F
|
Divorced
|
29
|
UK
|
|
Rena
|
PTSD
|
|
62
|
F
|
Divorced
|
20
|
UK
|
|
Steven
|
Bi-polar +
clinical depression + anxiety
|
|
43
|
M
|
Single
|
18
|
Canada
|
|
Tracy
|
PTSD
|
|
51
|
F
|
Married
|
5
|
Ireland
|
|
Una
|
Schizophrenia
|
|
60
|
F
|
Single
|
15
|
UK
|
|
Vincent
|
Depression
|
|
43
|
M
|
Single
|
3
|
UK
|
|
Warren
|
Anxiety + depression
|
|
48
|
M
|
Married
|
10
|
Ireland
|
|
Zack
|
Depression +
anxiety
|
|
53
|
M
|
Married
|
5
|
UK
|
Orientation to Life Questionnaire measure
According
to Eriksson & Lindström’s (2007) systematic review a measure of SOC
is applicable in the evaluation of education/training and for use with
both healthy people and people with serious illness and disabilities.
The SOC measure employed for this research is the Orientation to Life
Questionnaire abbreviated version SOC-13 (Antonovsky, 1987). The SOC-13
is measured on a 7-point Likert-type scale where each item has two
fixed contradictory responses at opposing ends of the scale.
Feldt,
Leskinen, Kinnunen, & Ruoppila (2003) reported that the SOC-13
measure has relatively high structural validity and high stability,
Hart, Hittner & Paras (1991) reported high validity, and Antonovsky
(1993a), Callahan & Pincus (1995), and Pallant & Lae (2002) all
reported a high level of reliability and content, face and construct
validity. More specifically, internal consistency testing has shown
Cronbach alpha scores ranging from .74 to .95 (Antonovsky 1993, 1996a,
Gallagher, Wagenfeld, Baro, & Haepers, 1994; Lundman & Norberg,
1993; Post-White et al. 1996; Volanen et al. 2006). In 1996(b)
Antonovsky reported that the scale showed reliability and validity
across social classes, different cultures, ethnic groups, ages and both
genders.
Qualitative measures
A series of ten
open-ended questions were designed for the project and these focused on
education, training, employment, unpaid activities and social networks
in the preceding 12 months and also on barriers, difficulties,
problems, and goals in the present and future. They were labelled as
self reports. Five of the participants also completed semi-structured
interviews; these people are labelled in the project as ‘key informant
service users’. They were selected on the basis that they met a
diagnosis of schizophrenia F20 (ICD-10), schizoaffective disorder F25
(ICD-10), or bipolar disorder F30-F31 (ICD-10). The first five
participants that met these diagnoses were selected. They were
requested to answer 16 questions within a formal interview; these
open-ended questions focused on aspects of quality of life, social
inclusion, personal goals and the project itself.
Procedure
Ethical
approval was obtained from the Institute of Psychiatry and Camden and
Islington Mental Health & Social Care Trust. All participants
provided informed consent and completed the SOC-13 measure and self
reports and the ‘key informant service users’ completed the
semi-structured interviews at baseline and at a ten month follow-up.
For the ‘key informant service user’ interviews the format employed was
a digitally recorded face to face interview. The interview was
semi-structured to encourage two-way communication and to enable fuller
answers to be provided and clarification of any answers given. For the
self reports the participants were given the choice of writing the
answers on a piece of paper, typing them into a computer or having
their answers digitally recorded in a face to face interview. If an
interview approach was chosen then the same procedure was employed as
for the ‘key informant service user’ interview.
Results
Quantative results
The
impact of the EMILIA intervention on participant’s scores on the
abbreviated SOC checklist: SOC-13 was evaluated. Paired sample t-tests
revealed that there was a significant increase in SOC-13 scores from
baseline (M=29.54, SD=12.23) to a 10 month follow-up point (M=34.82,
SD=10.80), t(21)=-2.58, p=.017 (two-tailed). The mean increase in
SOC-13 scores was 5.36 with a 95% confidence interval ranging from
-9.69 to -1.04. The eta squared statistic (.24) indicated a large
effect size.
Table 2.
Comparison of SOC means
|
|
General
population mean SOC*
|
Participants
baseline mean SOC
|
Participants
follow-up mean SOC
|
|
All
participants
|
65.16
|
29.45
|
33.07
|
|
Male only
|
65.6
|
33.25
|
37.88
|
|
Female only
|
64.8
|
27.29
|
34.82
|
* Population
means are from Konttinen, Haukkala, & Uutela (2008). This is a Finnish
study - no recent large scale population figures were available from the UK.
Discussion
Quantitative
SOC
significantly increased following the EMILIA intervention, matching the
research prediction. This indicates that the project may have enhanced
participants’ ability to manage potentially stressful situations. The
results provide evidence for the direct positive effect of formal
learning on individuals’ SOC shown by Suominen et al. (1999). They are
a demonstration of the wider benefits of the intervention because SOC
is negatively associated with psychopathology and negative affectivity,
and positively associated with well-being, mastery, quality of life,
general health, global well being, global psychosocial functioning and
self-esteem (Bengtsson-Tops & Hansson, 2001).
Even though
the average SOC scores increased significantly the mean scores of the
participants were still below the mean scores for a general population
(Konttinen et al. 2008). Not one of the participants in the study
reached the mean score for a general population. This points to the
continuing negative effect that having severe and enduring mental
illness can have on SOC strength.
Combined quantitative and qualitative results discussion
Qualitative
analysis revealed evidence for each of the a priori categories. The
following discussion will use extracts from the qualitative analysis to
describe the possible effects of the EMILIA intervention on the SOC
strength of participants.
There were extracts relating to
factors which have been identified as pathways through which SOC can be
strengthened such as teaching and reinforcing coping skills, enabling
individuals to identify, access, and mobilize resources available and
the facilitation of social interaction and support (Landsverk &
Kane, 1998). One participant relayed that:
Rena: “Doing the
EMILIA course has given me more confidence in myself and I’ve realised
I can do things even though I struggled.”
Having confidence is
clearly a valuable resource which enables an individual to mobilise and
access other resources. Also within this quote is the mention of
persistence despite difficulties, which is a coping strategy often
vital to ensure success in life. It is positively linked with
confidence, hope and an active optimistic style labelled as ‘fighting
spirit’ (Olason & Rodger, 2001). What's more, fighting spirit is
linked to adaptive health behaviour and coping with disease
(Pettingale, Morris, Greer, & Haybittle, 1985; Spiegel, 2001), and
positively correlated with SOC (Johnson, 2004). Also in terms of
psychological resources a participant mentioned an increase in dignity
and a sense of importance:
Una: “I think that it [EMILIA
training] has given me some dignity in my situation [having mental
difficulties] and I absolutely hate receiving benefits and I think that
it [EMILIA training] has given someone in my position the dignity to
feel a bit important anyway.”
A sense of dignity is part of the
human need to achieve and maintain various forms of integrity and it is
linked to a sense importance, intrinsic worthiness and self esteem; and
a sense of self esteem has been found to be positively related to SOC
in a population at risk of psychiatric disturbance (Cederbald &
Hansson, 1996). Deegan (1988, p. 15) described the mental health
recovery as process “to re-establish a new and valued sense of
integrity…” Dignity is an internal resource that can be viewed as
forming a part of a person’s SOC.
Social support is a key GRR
in the SOC model. Representing the sentiment of many participants one
participant simply stated that: “I have made more friends” (Ben).
Another participant expressed the feelings of many when they stated
that EMILIA was very useful in terms of: “…drawing on the support and
strengths within the community” (Dawoh). The following participant
expressed the value to them of the social interaction with other
service users that contributed towards more positive feelings and their
recovery:
Norris:
“I consider my participation in the EMILIA project to have gone well
and enabled me to meet and interact with people with similar mental
health issues in a positive and constructive way, that at the time it
was happening made me feel better in myself and better able to face up
to life in general.”
The
qualitative analysis revealed comments relating to possible enhanced
motivation and this is an indication of increased SOC (Antonovsky 1979;
1987). For example, “[Motivation] It developed, it progressed during
the training” (Isabel) and “[EMILIA gave me] more motivation to pursue
and maintain new social contacts” (Steven). The EMILIA project tried to
motivate its participants to pursue and complete the learning programme
by connecting the intervention with an individual’s personal goals. The
following statement is representative of comments expressed in relation
to this:
Dawoh:
“It’s all positive stuff. I found that very very useful in terms of
focusing and setting my goals and stuff. It helped to firm up my ideas
and goals, I found it very useful.”
Many
participants developed or found goals related to the mental health
issues explored in the training, examples of which is provided through
the following extracts:
Ben: “I want to do some voluntary training in order to eventually get paid employment in the mental health field.”
Isabel: “I may do something in mental health in the future because I am so passionate about it, you see.”
There
were many other statements which revealed insights into the development
of goals in other areas. Whilst no claim is made that the project
installed all of these goals in the participants it did help many
participants discover and set their own goals. The EMILIA teachers
helped participants to understand how the information taught related to
real-life issues and the participant’s life goals and roles (Parnell,
1994). This aspect is likely to be part of the contribution towards
stronger SOC (see Antonovsky, 1979; 1987). Deegan, (1988, p. 15) stated
that mental health recovery partially evolves through “the aspiration
to live, work, and love in a community in which one makes a significant
contribution”. Antonovsky (1979) explained that if individuals are
engaged in goal orientated behaviour that encourages success then this
can strengthen their SOC.
Connected to the formulation of goals
is future orientation. Frankl’s (1985, p. 37) work demonstrated the
importance of being “oriented toward the future, toward a meaning to be
fulfilled… in the future” in order be able to successfully adapt and
cope in life. The project may have reduced the negative effect of
future-orientated uncertainty caused by the experience of mental
disorder (McCann & Clark, 2004). There were a number of extracts
describing future orientation, for example: “I started to think: ‘what
do I need to do in the next year or so?’” (Ben) and: “Yeah. I am more
hopeful for the future” (Alvita). One participant provided a direct
reference to increased meaningfulness in their lives that had emerged
from their experience of the EMILIA project:
Alvita:
“It [EMILIA] has made me feel that what I went through was not in vane
if you see what I mean. Because I went through what I went through and
I was lucky enough to come out the other end I can help others and that
is where I’m from if you see what I mean…”
Helping
to achieve a realisation that their experience of mental illness had
provided participants with strengths, coping skills and expert
knowledge of the health system that can help them in their lives, and
also that they could use this experience to help others in their
recovery, was one of the core themes of the ‘Strengths’ module and a
goal of the project overall.
In addition, the increase in SOC
recorded could also be partially due to increases in empowerment as all
of the modules were partially aimed at achieving this. Empowering an
individual to take greater responsibility for his or her life and
health can strengthen an individual’s SOC meaningfulness factor
(Frankl, 1992). Furthermore, taking action to help to develop agency
and empowerment can facilitate recovery (Green, 2004). There were many
comments made in relation to empowerment, for example:
Steven:
“I have been able to begin to break the social restrictions I grew up
with, and take ownership of my life, to build healthier boundaries.”
Isabel: “And also being honest with myself and being able to ask for help when I need it. Because I never used to do that.”
Increased
empowerment may have enhanced self directedness (defined as how
responsible, purposeful and resourceful a person is in working to
achieve their goals and values) and this is factor has been found to
explain variations in SOC (Eklund et al. 2004). Empowering an
individual to take greater responsibility for his or her life unlocks
resources and helps create hope for the future (Langeland et al. 2007).
Representing the feelings of many one participant expressed the
following: “Yeah. I am more hopeful for the future” (Alvita).
A
sense of hope is vital for recovery and hope is positively related to
the SOC component of meaningfulness (Mascaro & Rosen, 2005). Having
hope for the future increases meaningfulness and it suggested that
having a strong sense of meaning in life provides stronger immunity
against hopelessness (Mascaro & Rosen, 2005). “Having some hope is
crucial to recovery [from mental disorder]; none of us would strive if
we believed it a futile effort” (Leete, 1989, p. 32).
Other
aspects of the project that may have contributed to the increased SOC
scores include the project’s paid employment opportunities (Volanen et
al. 2004; Linhorst, 2006). How much contribution that this has made to
the group’s overall SOC scores is questionable because at the time of
the follow-up only two of the participants had been involved in EMILIA
generated employment. However, many of the participants gained
employment outside of the project, both paid and voluntary, in the 10
months from baseline. For example, four of the participants started to
play an active role at a mental health charity, one became an
administrator, trustee and legal advisory to a major mental health
charity and another successfully helped set up a mental health related
social firm. One participant described the benefits that they derived
from their new employment:
Grace:
“…it is all about getting back to the helping aspects and I like that.
If I do something good in the day it makes me feel good. It makes me
feel better.”
The
analysis revealed that exposure to the EMILIA project also lead to the
development of existing and new areas of interest for many of its
participants; for example, interest in the service user movement,
mental health research, and the process of recovery. This is likely to
have stimulated minds (increasing comprehensibility), enriched lives
(increasing meaningfulness) and lead to feelings of personal
satisfaction (which can be important in a feeling of confidence which
Antonovsky described as essential for strong SOC levels). It is likely
that the development of new areas of interest will have made a
contribution to the finding of increased SOC strength.
Many of
the extracts in relation to goals, empowerment and areas of interest
provide evidence that the EMILIA teachers were able to get participants
to see both the specific objectives of learning and the larger meaning
as it relates to real-life issues and to participant’s actual roles in
life. This is what Parnell (1994) describes as essential in effective
teaching. It also helps demonstrates that the modules had meaning for
those who completed them, that they connected to the participants’
needs, problems, preferences, real-world existence, goals and ambitions
(Parnell, 1994; Boree, 1991).
Increased levels of employment,
working towards goals and new areas of interest are all a part of
active engagement in life. There is a dynamic positive relationship
between active engagement in life and meaningfulness strength (Carstens
& Spangenberg, 1997; Frankl, 1985; Mascaro & Rosen, 2005;
Yalom, 1980), and hence SOC.
Increased levels of employment,
working towards goals and new areas of interest are also connected to
purpose in life. As Mascaro & Rosen (2005) explained if a person
finds increased purpose in life then it is likely that this would
strengthen aspects of his or her mental health such as hope, well-being
and self confidence. An increased sense of purpose helps explain the
increased SOC found following the EMILIA intervention as it is linked
to meaning in life (Antonovsky, 1979; 1987; Yalom, 1980; Frankl, 1985).
The analysis helps confirm Hammond’s (2004) literature review which
revealed that learning can have a positive impact on an individual’s
sense of purpose and hope.
The increase in SOC found in this
study points to the value of various components and practical delivery
of the EMILIA learning modules. The analysis revealed extracts relating
to eight different examples of this:
1. EMILIA’s efforts to develop effective learner teacher relationships.
2. Allowing learners to express and validate their concerns and questions.
3. Creating a friendly supportive environment.
4. Providing constructive feedback.
5. Providing opportunities for self reflection.
6. The projects efforts to take into account the needs of MHSUs by allowing frequent breaks during the training.
7. The size of the group (approx 10-12 students), which participants generally responded well to.
8. EMILIA group teaching style and its use of variety of methods of delivery of material.
The
qualitative analysis also highlighted the positive effects of employing
MSHUs as trainers which helps confirm Rummel et al.’s (2005) findings
that peer led education for MHSUs is effective. MHSU trainers may have
acted as role models, allowing participants to see that others can cope
with and be successful despite their mental illness (see Ascher-Svanum
& Whitesel, 1999). Young & Ensing’s (1999) literature review
found that learning through role models and peers with a similar
experience can have an especially large positive effect on recovery.
The following extract is representative of participant comments:
Alvita:
“It was good that the teachers were in the same position as us as well
[i.e. mental health service users]. That was very good. I think that
that helped [us] to open up. I think that if the teachers hadn’t
experienced mental ill health I think that I would have probably opened
up but perhaps some other people may not have done. That was a very
good [aspect to the training]. It gave me more of a push to achieve as
well.”
Most
participants stuck with the project despite the challenges and problems
which they faced. Challenge and overcoming challenges is crucial in the
development of a strong SOC (Antonovsky 1979, 1987; Wolff & Ratner,
1999). Research suggests that successful coping can lead to the
development of further adaptive coping resources (Aldwin, 2000). There
is evidence from the qualitative analysis that EMILIA had a positive
effect on mental health recovery:
Dawoh:
“EMILIA had an [positive] impact. It came at a time when I was
transitioning and it helped with the transition. The EMILIA strengths
training help[ed] with my transitioning and focus on positive goals
drawing on community supports.”
Norris:
“I consider my participation in the EMILIA project to have gone well…
that at the time it was happening made me feel better in myself and
better able to face up to life in general.”
Isabel:
“Sharing in the group activities, learning things about myself that I
didn’t know. I thought I had lot things down in my mind about how I was
and how I came to be here but I didn’t really. And learning different
things and challenging myself. Things that I never thought I would do.
It is changing and it is a positive change.”
The
recovery associated extracts support the findings of Borg &
Kristiansen (2008) that employment, learning, and social interaction
are all important in generating a sense of hope, meaning, well being
and self-esteem. The extracts also reflect the core recovery processes
identified by Green (2004): development, learning, healing and
adaption. Lifelong learning and recovery are both part of the process
of managing and forging a meaningful, coherent understanding of the
experience of mental disorder.
Strengthening SOC can play an
important part in the mental health recovery process. Charmaz (1991)
describes recovery as involving the development of an understanding of
abilities and limitations (comprehensibility factor), making
adaptations and day-to-day life management decisions (manageability
factor) and setting long term goals that take into account the reality
faced in terms of strengths and capabilities (meaningfulness factor).
The
results of this study link recovery, social inclusion, lifelong
learning and SOC. They add to the findings of Hammond (2004) that
learning can have positive impact upon factors that include
self-esteem, self-efficacy, a sense of purpose and hope, competences,
and social integration. They support the findings of Feinstein &
Hammond (2004) that participation in formal learning is an important
element in positive cycles of personal and social development and
progression.
To foster recovery mental health services need
to: “understand how to help people maintain resources, how to
facilitate resource development, or how to help people prevent and stop
loss spirals” (Green, 2004, p. 305). It follows that there needs to be
an understanding of how to generate ‘gain spirals’, positive spirals in
which people gain GRRs and hence strengthen their SOC. This present
study’s results show that lifelong learning and employment
opportunities can help provide gain spirals. The results show that
EMILIA type interventions can: “provide opportunities for developing
necessary competencies” in the recovery process (Green, 2004 p. 302).
In
summary, the results showing an increase in SOC and meaningfulness and
extracts related to motivation, goals, empowerment, optimism, hope,
self-confidence, success, etc. demonstrate that EMILIA can strengthen
MHSUs ability to effectively respond to the needs and demands of their
lives. The results also reflect EMILIA participants increased ability
to be flexible, to generate of alternative solutions and to be
self-directed (Antonovsky, 1979). This study’s results indicate that
recovery, the strengthening of SOC and lifelong learning can be viewed
interlinked processes.
Limitations
There were a
number of limitations associated with this study. There was no control
group and the sample size was relatively small which limits the
quantitative results generalisablity due to a lack of statistical
power. Countering this was the use of triangulation: the qualitative
results supported the quantitative. The participants can be considered
to be reasonably representative of the MHSU population but self
selection is likely to mean that the participants tended to be more
stable, empowered, and socially included, and have higher self
confidence and self efficacy than the average MHSU. The self selective
method is also likely to have meant that the sample was skewed to those
who had more of an interest in learning and employment than the average
MHSU. This means that the participants were more likely to be motivated
to do well, provide positive feedback, complete the training and take
up employment opportunities than the average MHSU.
Conclusion and implications
This
research points to the possibility of developing learning interventions
based on SOC theory and salutogenic principles. SOC theory can be
regarded as a theoretical framework for designing interventions for
MHSUs that seek to enhance recovery, social inclusion and empowerment.
MHSUs,
for the most part, live within the community. For them to prosper, take
part in and contribute to the community they require access to lifelong
learning and employment opportunities. This study’s results support the
funding and delivery of programmes such as EMILIA which can be
considered part of the responsibility of society to create the
conditions that promote SOC strength (Antonovsky, 1979, 1987). It can
be part of the vision of a salutogenic society.
Projects such
as EMILIA enable an opportunity to participate in a normalising
activity and thus help to reduce the problem of social marginalisation
experienced by so many people with severe and enduring mental health
disorders. The findings provide evidence for continued and embedded use
of the modules designed for the EMILIA project and for extending
EMILIA’s underlying principles and practical application to further
groups of MHSUs. Project such as EMILIA could be implemented across and
beyond Europe.
An EMILIA style opportunity could be an
integrated part of mental health services. MHSUs could be offered a
choice of different learning modules, and on completion of these they
could be offered help in finding a job and supported in any employment
found in the competitive market place. To provide embedded EMILIA style
opportunities requires adequate funding, cooperation between health
services, education providers, etc., and integrated and progressive
systems that are sensitive to the individual, their needs and their
right to be socially included in terms of learning, employment, etc.
Bergstein,
Weizman, & Solomon (2008, p. 288) explained the “necessity of an
integrative biopsychosocial treatment approach, which would include
interventions aimed at enhancing elements of SOC.” Projects such as
EMILIA could be part of a comprehensive, coordinated, compassionate,
service user-oriented, and service user involved integration of
treatment and rehabilitation for MHSUs. This integration should be
based on a combination of salutogenic and pathogenic principles
(Antonovsky, 1979; 1987).
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