The
International Journal of Psychosocial Rehabilitation
Peer
Specialists and Carer Consultants Working in Acute Mental Health Units:
An
Initial Evaluation of Consumers, Carers, and Staff Perspectives
Leonard
W Kling
B.
Psych. (Hons.), M. Psych. (Clin)
Clinical
Psychologist, Central Northern
Adelaide Mental Health Directorate
83 Currie Street,
Adelaide SA 5000.
leokreug@hotmail.com
Fiona
J Dawes
B.S.W.,
Grad Dip Ad. Ed., M. Ed.
Senior
Project Officer, Central Northern
Adelaide Mental Health Directorate
Paul
Nestor
Peer
Specialist Coordinator Central Northern
Adelaide Mental Health Directorate
Citation:
Kling LW, Dawes FJ, Nestor P (2008). Peer Specialists and
Carer Consultants Working in Acute Mental Health Units: An Initial
Evaluation
of Consumers, Carers, and Staff Perspectives International
Journal of Psychosocial Rehabilitation. 12 (2), 81-95
ACKNOWLEDGEMENTS: The authors
would like to extend thanks to all Central Northern
Adelaide Health Service consumer, family, and staff participants whose
contributions of wisdom and time are appreciated.
Abstract
The purpose of
this project was to evaluate the impact of introducing Peer Specialists
(PS)
and Carer Consultants (CC) as employees in the targeted acute units of
CNAHS. A
random sample of 30 consumers and 25 carers completed questionnaires as
did 58
volunteer pre-existing staff members and 12 newly employed PS and CC.
To
provide further information, appointed PS and CC mentors also
participated in a
discussion group. Overall, data indicated that the employment of PS and
CC was
positively associated with various consumer, carer, organisational, and
personal gains. Reported issues are consistent with existing literature
and
such information is being used to direct future endeavours and
positively
reorient existing systems.
Keywords: Mental Health,
Peer Specialist, Carer Consultant, CNAHS
Introduction
The effective
delivery of mental health services continues to evolve and services
often
experience both structural and cultural shifts. In Australia
and many other countries, the trend to integrate consumers and carers
into the
development, implementation, delivery, and evaluation of mental health
services
is articulated through ongoing policy changes (Australian Health
Ministers,
1992, 1998, 2003; Commonwealth of Australia, 1997, National Mental
Health
Working Group, 1996). Furthermore, it is evident that consumers
demonstrate an
ongoing desire to have greater representation and involvement in all
aspects of
mental health service provision (Berger, Carter, Casey. &
Litchefield, 1996;
Meehan, Bergen, Coveney & Thornton, 2002; Connor 1999).
Minimal research
has been conducted in the developing area of consumer and/or carer
inclusion on
acute units. However, an expanding literature consistently indicates
that
service provision can be improved with the addition of such, “lived
experience”
staff. An increasing number of people who experienced or continue to
experience
episodes of mental illness are successfully working as trained staff
(e.g.,
Peer Specialists) within mental health areas. The unique insight gained
through
being a former client of mental health services is potentially valuable
and
associated with numerous positive consumer, organisational, and
personal, gains
(Lawrence, 2004; McAllistster & Walsh, 2004). Research indicates a
positive
correlation between involvement with a Peer Specialist and gains in
both
consumer welfare (Soloman, 2004; Voelker, 1994) and the mental health
delivery
system (Soloman, 2004).
Additionally,
research evidence suggests that carer involvement (e.g., Carer
Consultants) in
the workforce is beneficial to the consumers they are working with, the
employing organisations, and to the individuals themselves. For
example, the
Mental Health Branch, Victorian Government Department of Human Services
reported that the involvement of carers in mental health services
contributed
to overall improvements in consumer’s treatment adherence, quality of
life,
social adjustment, family functioning, and periods of wellness (2004).
Although the
additional benefits of employing the services of consumers and carers
are
evident, researchers have also identified particular barriers that
impede
effective consumer and carer participation. Such barriers include the
negative
attitudes of pre-existing professional staff members (Gordan 2005;
Happell
& Roper, 2006. Lammers & Happell, 2004) and insufficient
training/support for newly employed consumers and/or carers (Happell
&
Roper, 2006; Middleton, Stanton, & Renouf, 2004;
Roper, 2003). Research evidence also
suggests that consumers may lack the unique knowledge and skills set
required
of mental health care staff (Campbell, 1990; Miller & Katz, 1992;
Pyke et
al, 1991). However, such a barrier can be overcome with adequate
training and
studies also reported that the psychological well-being of
appropriately
trained consumers providing acute services was not adversely impacted
(Meehan, Bergen, Coveney,
& Thornton, 2002).
Literature
continues to explore strategies for overcoming barriers to consumer and
carer
participation in service delivery and new mental health initiatives
continue to
expand service provision to include such strategies. In 2006 as a new
mental
health service innovation, Central Northern Adelaide Health Service
(CNAHS)
employed Peer Specialists and Carer Consultants into each permanent
acute unit
within the region (i.e., Cleland and C3 in the East, 1G and Woodleigh
House in
the North and Cramond Unit in the West) and several state-wide
specialist
services (e.g., Forensic).
The general purpose of the
current
report was to evaluate the impact of introducing Peer Specialists and
Carer
Consultants as employees on the targeted acute units within CNAHS. The specific aims were to evaluate the impact of
newly
employed Peer Specialists and Carer Consultants on consumers and carers
and to
gauge any pre- to post-employment perceptual shifts among existing
staff and
newly employed Peer Specialists and Carer Consultants.
Method
Participants
Participants
included consumers and carers, pre-existing staff, newly employed
staff, and
their mentors. To assure anonymity at time of participation, specific
demographic details were not obtained from volunteers.
A
random sample of 30 consumers and 25 carers who utilised acute services
of the
targeted units were invited to complete a questionnaire during
telephone
contact. Each Peer Specialist and Carer Consultant maintained client
contact
sheets and members of the research team obtained such records at
6-months
post-employment for each new staff member. Thus, consumer and carer
participants were drawn from a 2-week time period either side of the
respective
6-month post-employment client contact pool. The required pool of
participants
required for adequate research power was based on in-patient and
discharge
statistics reported by the Clinical Evaluation Unit and the Clinical
Nurse
Consultants of each targeted acute unit.
Additionally,
prior to the formal introduction of the newly employed Peer Specialists
and
Carer Consultants, 58 pre-existing staff members working on the
targeted acute
units volunteered to complete pre-questionnaires. For various reasons
(e.g.,
staff absences, resignations) 46 pre-existing staff members completed
post-questionnaires. A broad range of professionals participated from
each unit
(e.g., Psychiatrists, Nurses, Occupational Therapists, Psychologists,
and
Social Workers).
After screening
and interviewing of applicants, the newly employed Peer Specialists and
Carer
Consultants attended various training and induction workshops (e.g.,
2-day
Helen Glover Recovery Workshop, 3-day Orientation to CNAHS Workshop).
At the
time of writing, such staff were reported to continue with ongoing
training and
development since being employed (e.g., Certificate 3 in Mental Health:
Non-Clinical, additional Helen Glover workshops). Twelve of the new
employees
completed both pre- and 6-month post-employment questionnaires.
Finally, Peer
Specialists and Carer Consultants also had a respective staff mentor
appointed
by Carers SA and Baptist Community Services (i.e., non-government
organisations
supporting the current initiative). Both mentors were involved in the
process
of recruiting, training, and sustaining the newly employed staff.
Broadly, both
mentors conducted monthly small groups with staff to discuss their
experiences,
associated feelings and issues. However, they were also available for
individual support.
Specifically,
the mentor program for Carer Consultants commenced with and sustained a
strongly educational approach and provided high levels of information
on new
resources and programmes available to carers. The initial mentor
program for
Peer Specialists focused on problem solving and support in a group
format
however evolved to one-on-one mentoring. At approximately six months
post-employment of Peer Specialists and Carer Consultants, the
appointed mentors
participated in an hour-long discussion focus group coordinated by a
member of
the research team.
Design
The
current project utilised a pre- and post non-experimental design.
Information
was gathered from consumers, carers, and staff mentors at approximately
6-months post-commencement of duties for Peer Specialists and Carer
Consultants.
Pre-existing
staff and newly employed Peer Specialists/Carer Consultants completed
questionnaires prior to the commencement of the new staff’s ward duties
and
then again at approximately 6-months post. All relevant ethics
committees
approved the current project there are no disclosures to be made.
Measures
Consumers and Carers
Questionnaire. This purpose designed
14-item,
telephone conducted questionnaire was used to ascertain consumers and
carers
perceptions regarding their experiences with either Peer Specialists or
Carer
Consultants while utilising the services of their respective acute
unit.
Distinct forms were used to gather information from consumers (e.g., “How good was the Peer Specialist at
increasing your sense of hope for recovery”) and carers (e.g., “How good was the Carer Consultant at
reducing your distress by sharing their coping strategies”) where 0
= very poor, 4 = very good. Two
open-ended questions invited qualitative data
regarding perceived unique contribution of such staff and suggestions
for
improving such services.
Pre-existing Staff
Questionnaire. This purpose designed
20-item,
self-report measure was used to gauge participant’s perceptions
regarding the
introduction of Peer Specialists and Carer Consultants as employees of
acute
units within CNAHS. Two forms of this questionnaire were used prior to
induction (e.g., “Peer Specialists will
foster hope for recovery in consumers”) and again at approximately
6-months
post-induction (e.g., “Peer Specialists
foster hope for recovery in consumers”.) where 1 = totally
disagree, 10 = totally
agree. Four open-ended questions invited qualitative data regarding
perceived benefits, difficulties, potential resolutions, and additional
comments.
Newly Employed Peer
Specialists and Carer Consultants Questionnaire This
purpose designed 18-item, self-report measure was used to gauge
participant’s
perceptions regarding the introduction of Peer Specialists and Carer
Consultants
as employees within acute units. Two forms of this questionnaire were
used
prior to commencing ward duties (e.g., “Carer
Consultants sharing their strategies will reduce carer distress”)
and again
at approximately 6-months post
commencement of unit duties (e.g., “Carer
Consultants sharing their strategies reduces carer distress”) where
1 = totally disagree, 10 = totally agree.
Four open-ended questions
invited qualitative data regarding perceived benefits, difficulties,
potential
resolutions, and additional comments.
Procedure
Depending
on the medium of contact (i.e., face-to-face, telephone), potential
participants were provided with either a letter of introduction or a
verbal
report that detailed the aims of the current study and advised of
ethics
approval from relevant bodies. All potential participants were ensured
of
confidentiality, advised that participation was voluntary, and that
they could
discontinue at any time.
Consumers
and Carers.
Both
the Peer Specialists and the Carer Consultants maintained contact
records in
regards to the consumers and carers they worked with. From such
records, a
random sample of potential participants was collated from a two-week
block
either side of the 6-months post-employment period for each new staff
member.
Consumers and Carers were contacted via telephone and invited to
verbally
respond to a questionnaire.
Pre-existing
Staff.
Prior
to commencement of unit duties for newly employed Peer Specialists and
Carer
Consultants, CNAHS representatives involved with the implementation of
such an
initiative toured the targeted acute units and spoke with staff
members.
Pre-existing staff were provided with information regarding the new
roles and
had the opportunity to have their questions answered.
At
pre- and post-assessment, Clinical Nurse Consultant’s on targeted acute
units
were contacted to arrange appropriate times to approach potential
participants
and invite them to complete a questionnaire. Such questionnaires were
predominantly completed prior to ward rounds and returned to the
researcher,
however some staff opted to forward the completed questionnaires via
internal
mail.
Newly Employed Peer
Specialists and Carer Consultants.
Peer
Specialists and Carer Consultants were invited to complete pre-
questionnaires
during a CNAHS orientation workshop and the research team collected
completed
questionnaires. Post-questionnaires were posted to prospective
participants and
were returned via reply-paid envelopes.
Peer
Specialist and Carer
Consultant Mentors.
Appointed
mentors for the Peer Specialists and Carer Consultants were asked to
provide
their feedback on the experience of mentoring via a discussion focus
group.
Topics covered included: emotional support, structural issues,
planning, and
recommendations.
Results
Consumers
in Response to Contact With Peer Specialists
Of
the 30 consumers who participated in the telephone conducted
questionnaire, 25
recalled having contact with a Peer Specialist while utilising acute
services.
Four of the five consumers who did not recall contact with a Peer
Specialist
reported not knowing of such a staff member and did not recall being
offered
such services. The fifth participant declined to engage with such
services.
Additionally, of the 25 participants, 10 reported being aware of a
Carer
Consultant on the ward.
Descriptive
statistics of consumer response scores post-contact with Peer
Specialists are
summarised in Table 1. Overall, such results were positive. The highest
ratings
indicated that Peer Specialists were considered good or better at
helping the
consumer feel supported, helping them identify their coping strategies,
and
increasing the consumer’s sense of hope for recovery. Additional
ratings
indicated that Peer Specialists were considered better than acceptable
at
encouraging consumer self-management, increasing consumer understanding
of
experienced symptoms, sharing their personal coping strategies, and
connecting
the consumer to community resources.
Table 1
Descriptive
Statistics of Consumer Response Scores Post-contact with Peer Specialist
|
|
Mean
|
SD
|
Min
|
Max
|
|
Response Items
|
|
|
|
|
|
Increasing understanding
of symptoms
|
2.88
|
.83
|
1
|
4
|
|
Sharing their personal
coping strategies
|
2.76
|
1.13
|
0
|
4
|
|
Helping to identify
consumer coping strategies
|
3.04
|
1.10
|
0
|
4
|
|
Increasing sense of hope
for recovery
|
3.16
|
.90
|
1
|
4
|
|
Helping consumer feel
supported
|
3.00
|
1.04
|
0
|
4
|
|
Encouraging
self-management
|
2.96
|
.98
|
0
|
4
|
|
Connecting with community
resources
|
2.64
|
.70
|
2
|
4
|
Note.
Participants (N = 25) were asked to rate their
responses on a scale where responses ranged from 0 = very
poor to 4 = very good
Qualitative
data was obtained through open-ended questions and many respondents
commented
on the helpful nature of all staff with one respondent reporting the
received
acute services to be better than associated services obtained in the
private
sector.
Participating
consumers were also asked if they found anything to be different or
special
about working with a Peer Specialist in comparison to other staff.
Obtained
comments reflected quantitative data with the dominant theme being that
the
Peer Specialist’s lived experience normalised situations, promoted a
greater
sense of feeling understood, of feeling comforted, and exemplifying the
potential for recovery. For example, statements provided by interviewed
consumers included: the Peer Specialist “Understood what we were going
through
and helped me understand”, “Made that stay the best one. I felt really
comfortable”, and “Knew what it was like. They lived it and got better
enough
to work”.
Conversely,
two respondents reported conflicts in personality. However, when asked
how the
Peer Specialist service could be improved, most respondents encouraged
employing more Peer Specialists and/or increasing their working hours.
One
respondent suggested that promoting the valuable role of Peer
Specialists to
the broader community could reduce the stigmatisation surrounding
mental
health.
Carers
in Response to Contact With Carer Consultants
Of
the 25 carers who participated in the telephone conducted
questionnaire, 21
recalled having contact with a Carer Consultant while utilising acute
services.
The four carers who did not recall contact with a Carer Consultant
reported not
knowing of such a staff member and did not recall being offered such
services.
Additionally, of the 25 participants, four reported being aware of a
Peer
Specialist on the ward. One such respondent attributed the compliance
of her
family member to the helpful efforts of the Peer Specialist.
Descriptive
statistics of carer response scores post-contact with Carer Consultants
are
summarised in Table 2. Overall, such results were positive. The highest
ratings
indicated that Carer Consultants were considered better than good at
helping
carers feel supported and reducing carer distress by sharing their
coping
strategies. Additional ratings indicated that Carer Consultants were
better
than acceptable at increasing carer’s sense of hope for the recovery of
the
consumer being cared for, helping carers identify and build upon their
personal
coping strengths in their caring role, assisting carers in learning
about the
hospital system, and explaining the Well Ways Program.
Table 2
Descriptive
Statistics of Carer Response Scores Post-contact with Carer Consultant
|
|
Mean
|
SD
|
Min
|
Max
|
|
Response Items
|
|
|
|
|
|
Assisting with learning
about hospital system
|
2.86
|
1.24
|
0
|
4
|
|
Explaining the Well Ways Program
|
2.76
|
1.48
|
0
|
4
|
|
Helping carer feel
supported
|
3.57
|
.68
|
2
|
4
|
|
Increasing sense of hope
for consumer’s recovery
|
2.95
|
.92
|
1
|
4
|
|
Reducing carer distress
|
3.24
|
.89
|
1
|
4
|
|
Helping to identify carer
coping strategies
|
2.90
|
1.00
|
1
|
4
|
Note.
Participants (N = 21) were asked to rate their responses on a scale
where responses ranged from 0 = very poor
to 4 = very good.
Participating
carers were also asked if they found anything to be different or
special about
working with a Carer Consultant in comparison to other staff. Many
respondents
acknowledged the good work of all unit staff with comments such as,
“all staff
were professional and relaxed”. However, obtained comments reflected
quantitative data with the dominant theme being that the Carer
Consultant’s
personal experience with similar issues provided them with a knowledge
and
insight that helped carers feel more comfortable and supported.
One
carer summed up her experience as follows: the Carer Consultant
“Explained
their experience very well. It was nice to know that someone knew what
I was
experiencing” and another who reported, “After 10 years, it was the
first time
I ever felt a connection”. Overall, comments suggested that the Carer
Consultants provided a worthwhile service.
Respondents were
also asked for suggestions on how the Carer Consultant service could be
improved. All reported suggestions involved more available time with
the Carer
Consultant through ongoing follow-up post-discharge, providing a
country
service, employing more Carer Consultants, and making their positions
full-time.
Pre-existing
Staff Perceptions Regarding Peer Specialists Roles
A paired-samples
t-test was conducted to evaluate shifts in pre-existing staff
perceptions of
Peer Specialists and Carer Consultants from pre- to post-commencement
of
duties. With the exception of reporting a greater understanding of
their role,
participant’s scores declined on nearly all measured items from pre- to
post-commencement of Peer Specialist employment duties (see Table 3).
There was
a statistically significant decrease in scores, indicating less
favourable
perceptions over time for the following:
Table 3
Descriptive
Statistics of Pre-existing Staff Perceptions Regarding Peer Specialists (PS) Roles
|
|
Pre
M (and SD)
|
Post
M (and SD)
|
Min
|
Max
|
|
Response Items
|
|
|
|
|
|
Benefits consumers
|
7.89 (1.55)
|
7.09 (1.91)
|
5
|
10
|
|
Understanding of their
role
|
6.28 (2.58)
|
6.39 (2.34)
|
1
|
10
|
|
Foster hope for recovery
|
7.48 (1.29)
|
6.67 (1.90)
|
5
|
10
|
|
Encourage personal
responsibility
|
7.17 (1.68)
|
6.52 (2.30)
|
3
|
10
|
|
Enhance connection to
resources
|
7.48 (1.41)
|
6.72 (2.14)
|
5
|
10
|
|
Benefits other unit staff
|
7.20 (1.66)
|
6.30 (2.56)
|
3
|
10
|
|
Feel confident to make
referrals to PS
|
6.54 (2.40)
|
6.46 (3.02)
|
1
|
10
|
|
Will offer support to PS
|
8.93 (1.07)
|
7.93 (2.02)
|
6
|
10
|
Note. Participants (N = 46) were
asked to rate their
responses on a scale where responses ranged from 1 = Totally
Disagree to 10 = Totally
Agree.
Firstly,
Peer Specialists working within acute mental health units was perceived
as less
beneficial to consumers from pre- (M
= 7.89, SD = 1.55) to post-evaluation
(M = 7.09, SD = 1.91), t(45)
=2.26, p<.05. The eta squared statistic
(.10) indicated a moderate effect size. Secondly,
Peer Specialists working within acute mental health units was perceived
as less
beneficial to other staff from pre- (M
= 7.20, SD = 1.66) to post-evaluation
(M = 6.30, SD = 2.56), t(45)
= 2.17,
p<.05. The eta squared (.10)
statistic indicated a moderate effect size, Thirdly, Peer Specialists
were
considered less able to enhance a consumer’s connection to community
resources
from pre- (M = 7.48, SD = 1.41) to
post- evaluation (M = 6.72, SD =
2.14), t(45) = 2.04,
p<.05. The eta squared (.09)
statistic indicated a moderate effect size. Finally,
pre-existing staff reported less willingness to offer support to Peer
Specialists from pre- (M = 8.93, SD =
1.07), to post-evaluation (M = 7.93, SD
= 2.02), t(45) = 3.07,
p<.005. The eta squared (.18)
statistic indicated a large effect size.
Although
some summary comments obtained through open-ended questions implied
non-existent benefits to consumers and somewhat reflected the above
data, the
majority of comments were positive and optimistic. In collating such
comments a
recurrent theme of empathy arose whereby the consumer was consistently
reported
to benefit from liaising with a staff member who had lived experience.
For
example, one respondent commented, “Peer Specialists can support
consumers on a
personal level that can not be matched by mental health professionals”.
Additionally,
pre-existing staff consistently reported consumers to benefit from Peer
Specialist interactions through the varied information provided during
group
processes, one-on-one sessions, and through first-hand knowledge of
available
community resources. Further comments suggested that pre-existing staff
also
benefited from Peer Specialists who provided another support outlet and
constructively occupied consumer time.
The
information provided regarding difficulties arising from the
introduction of
Peer Specialists was mixed. Encouragingly, the substantial difficulties
first
projected at pre-assessment were not founded. At post-assessment, some
pre-existing staff reported “nil difficulties” while others on the same
ward
reported numerous difficulties. The majority of difficulty appeared to
arise in
the areas of role clarity and communication with pre-existing staff.
Furthermore, Peer Specialists were reported to have limited
understanding of the
mental health system and the varied roles of staff members.
Pre-existing staff
were forthcoming with information and offered valuable resolutions for
reported
difficulties (e.g., further training).
Pre-existing Staff Perceptions Regarding Carer
Consultants Roles
With
the exception of a slight increase on scores in understanding of the
Carer
Consultants role and pre-existing staff’s confidence in making
referrals to
such services, participant’s scores declined on most measured items
from pre-
to post-commencement of Carer Consultant duties (see Table 4). There
was a
statistically significant decrease in scores, indicating less
favourable
perceptions over time for the following.
Table 4
Descriptive
Statistics of Pre-existing Staff Perceptions Regarding Carer Consultant (CC) Roles
|
|
Pre
M (and SD)
|
Post
M (and SD)
|
Min
|
Max
|
|
Response Items
|
|
|
|
|
|
Benefits carers
|
7.87 (1.50)
|
7.20 (1.85)
|
1
|
10
|
|
Understanding of their
role
|
6.15 (2.62)
|
6.59 (2.40)
|
1
|
10
|
|
Reduce carer distress
|
7.30 (1.31)
|
7.13 (1.80)
|
1
|
10
|
|
Assist with acute service
pathways
|
7.28 (1.54)
|
6.72 (2.12)
|
1
|
10
|
|
Enhance connection to
resources
|
7.61 (1.47)
|
7.02 (2.01)
|
1
|
10
|
|
Benefits other unit staff
|
7.37 (1.54)
|
6.80 (2.43)
|
1
|
10
|
|
Feel confident to make
referrals to CC
|
6.74 (2.23)
|
6.85 (2.78)
|
1
|
10
|
|
Will offer support to CC
|
8.85 (1.15)
|
7.96 (1.87)
|
4
|
10
|
Note. Participants (N = 46) were
asked to rate their
responses on a scale where responses ranged from 1 = Totally
Disagree to 10 = Totally
Agree.
Firstly,
Carer Consultants working within acute mental health units were
perceived as
less beneficial to carers from pre- (M
= 7.87, SD = 1.50) to post-evaluation
(M = 7.20, SD = 1.85), t(45)
=2.02, p<.05. The eta squared statistic
(.08) indicated a moderate effect size.
Secondly,
pre-existing staff’s willingness to offer support to Carer Consultants
declined
from pre- (M = 8.85, SD = 1.15) to
post-evaluation (M = 7.96, SD = 1.87),
t(45) = 1.49,
p<.005. The eta squared (.05)
statistic indicated a small effect size.
Information
gathered through open-ended questions qualified the above data.
However, mixed
among comments that reported non-existent benefits of employing such
staff
members, some pre-existing staff from each site also indicated
favourable
experiences attributed to the role of Carer Consultants. For example,
respondents made comments such as, “Carer’s appear less frustrated with
the
system” and their role “does lift some of the load from other staff”.
Another
participant wrote, “Carer Consultants provide enhanced support for
families”.
Finally, one respondent wrote, “I refer a lot of families to Carer
Consultants
– all of whom have given very positive feedback regarding their
contact”.
The
information provided regarding difficulties arising from the
introduction of
Carer Consultants was also mixed. For example, some staff reported no
apparent
difficulties while others on the same ward commented on communication
barriers,
training requirements, and insufficient role clarity.
Newly
employed Peer Specialists and Carer Consultants
A
Wilcoxon Signed Rank Test was conducted to evaluate shifts in newly
employed
Peer Specialists and Carer Consultants perceptions of their respective
roles.
Overall, participant’s scores increased on all measured items from pre-
to
post-commencement of employment duties (see Table 5). There was a
statistically
significant increase in scores indicating more favourable perceptions
over time
for the following two areas.
Table 5
Descriptive
Statistics of Newly Employed Staff Perceptions Regarding Carer
Consultant (CC)
and Peer Specialist (PS) Roles
|
|
Pre
M (and SD)
|
Post
M (and SD)
|
Min
|
Max
|
|
Response Items
|
|
|
|
|
|
Feel positive about
employment of PS
|
9.00 (0.94)
|
9.25 (2.00)
|
3
|
10
|
|
Understanding role of PS
|
8.40 (0.52)
|
9.42 (0.90)
|
8
|
10
|
|
PS foster hope for
consumer recovery
|
8.70 (0.95)
|
9.33 (0.89)
|
7
|
10
|
|
PS encourage consumer
responsibility
|
8.10 (0.88)
|
9.08 (1.00)
|
7
|
10
|
|
PS enhance connection to
resources
|
7.80 (0.42)
|
8.25 (1.36)
|
6
|
10
|
|
PS role benefits other
unit staff
|
7.70 (0.68)
|
8.75 (1.82)
|
4
|
10
|
|
|
|
|
|
|
|
Feel positive about
employment of CC
|
8.58 (1.08)
|
8.75 (1.66)
|
5
|
10
|
|
Understanding role of CC
|
7.33 (1.23)
|
8.58 (1.44)
|
5
|
10
|
|
CC reduce carer distress
|
8.17 (1.27)
|
8.33 (1.88)
|
5
|
10
|
|
CC help carers navigate
service paths
|
7.67 (1.16)
|
8.00 (1.35)
|
5
|
10
|
|
CC enhance connection to
resources
|
8.00 (0.95)
|
8.08 (1.17)
|
6
|
10
|
|
CC role benefits other
unit staff
|
7.83 (0.94)
|
8.42 (1.57)
|
6
|
10
|
|
|
|
|
|
|
|
Feel confident about
receiving referrals
|
7.58 (1.08)
|
8.17 (2.95)
|
1
|
10
|
|
Feel confident about
being supported
|
6.83 (1.19)
|
7.33 (2.74)
|
1
|
10
|
Note. Participants (N = 12) were
asked to rate their
responses on a scale where responses ranged from 1 = Totally
Disagree to 10 = Totally
Agree.
Firstly,
obtained scores indicated a greater understanding of the new role Peer
Specialists have in promoting consumer recovery from pre- (M
= 8.40, SD = .52) to
post-evaluation (M = 9.30, SD = .95),
z = -2.08, p < .05.
Secondly, the perception that Peer Specialists encourage personal
responsibility by modelling coping strategies increased from pre- (M = 8.10, SD = .88) to post-evaluation
(M
= 8.90, SD = 1.0), z = -2.06, p <
.05.
Information
gathered through open ended questions substantiated the above data and
maintained an air of optimism from pre- to post-assessment. The
predominant
theme of responding indicated substantial gains achieved through
consumers
identifying with the lived experience of the newly employed staff.
Consumers
were reported to confide with Peer Specialists and Carer Consultants
thus
providing additional information that helped inform other staff on
treatment
and follow-up options.
The majority of difficulties
were
similar to those addressed by pre-existing staff (e.g., role clarity
and
communication between staff members working with the same consumer).
Additional
areas of concern related to fitting in with pre-existing team dynamics
and the
unexpected pressures of working within an acute environment. Both
groups of
Peer Specialists and Carer Consultants reported the need for a referral
system
that better informed them of consumer needs and appropriateness for
making initial
contact.
Mentors for Peer Specialists and Carer Consultants:
Discussion Focus
Group
The
two assigned mentors participated in an hour-long discussion focus
group
chaired by a member of the research team. In considering the impact of
introducing Peer Specialist positions, it was evident that such
positions are
highly sought after and help reinforce consumers hope for recovery.
In
regards to the impact of introducing Carer Consultant positions,
mentors
reported that the carer community felt “heartened” and the provision of
such
positions is acknowledgement of their valuable carer role. Carers SA
particularly noted an increase in referrals to carer agencies since the
inception of Carer Consultants.
Mentors
also reported the educational component of their role to be most
valuable and
effective in enhancing staff’s competencies. They reported to observe a
strong
within group support process develop which both Peer Specialists and
Carer
Consultants valued. Consequently, the mentors collaborated on
developing a
Mentor Training Program by which peer-to-peer mentoring processes will
be
formalised and inclusive of relevant training.
Discussion
Central
Northern Adelaide Health Service (CNAHS) employed Peer Specialists and
Carer
Consultants on five permanent acute units within the region. The
current report
aimed to summarise and evaluate information obtained from
consumer/carer
feedback, pre- and post-employment staff questionnaires, and Peer
Specialist/Carer Consultant mentor discussion.
Overall,
the feedback provided from consumers and carers was consistently
positive. Both
groups of Peer Specialists and Carer Consultants were reported to be
effective
supports for increasing hope for recovery. Above all, the lived
experience of
such staff members was repeatedly commented to be a valuable and
appreciated
source of acknowledgment and understanding.
Conversely, pre-existing
staff on the targeted acute units perceived
the introduction of Peer Specialists and Carer Consultants less
favourably over time. However, such staff also reported a
greater understanding of the respective roles. Such results are
influenced by numerous factors including the following.
Firstly,
pre-existing staff provided surprisingly high pre-assessment scores. To the contrary of reports which cited the
negative attitudes
of mental health professionals as a major barrier to effective consumer
participation (e.g., Gordan 2005; Happell & Roper, 2006.
Lammers
& Happell, 2004) the high initial scores reported in this paper
implied a
degree of optimism and acceptance among pre-existing staff.
It
is also possible that inflated initial scores were reflective of the information provided during pre-employment
introduction
sessions. Although there was limited scope for an increase in
such
scores over time, the average reported scores remained in the positive
response
domain.
Secondly,
it is possible that the systemic and cultural adjustment challenges faced by introducing a novel and inexperienced
group of
staff was overlooked by everyone involved with such an endeavour. It is
believed that the experience of such challenges contributed to less
favourable
perceptions over time among pre-existing staff that held high initial
expectations. Specifically, it is hoped that the reported decline in
pre-existing staff’s willingness to offer support to either Peer
Specialists or
Carer Consultants will improve as all staff and coordinating bodies
endeavour
to further implement positive change and address restraints.
Finally,
both the pre-existing and newly employed staff participants reported difficulties with cross-communication. Both
groups desired
more opportunity and/or an agreed upon structure to liaise with each
other at
various stages of consumer and family care (i.e., initial referral,
pre-contact, follow-up debriefing). With such communication issues, it
is
possible that the involvement and value of Peer Specialists and Carer
Consultants was not questioned or expressed by various parties. For
instance,
consumers and carers who utilised the services of Peer Specialists and
Carer
Consultants predominantly reported positive experiences and valued the
inclusion of such staff on the acute units. Possibly, the pre-existing
staff
who reported nil benefits of employing the newly introduced staff were
not
provided with opportunity to receive such feedback.
Conversely, Peer
Specialists and Carer Consultants perceived
their role more favourably over time. The
overall buoyancy of the
pre- and post-assessment scores suggests a resilient optimism by the
Peer
Specialists and Carer Consultants regarding the value of the lived
experience
roles and this is supported by the reported consumer and carer
feedback. Interestingly, the newly
employed Peer Specialists and
Carer Consultants also had high pre-assessment scores and despite
aforementioned
challenges, their scores increased over time. It is possible that an
increase
in scores is also associated with such staff receiving ongoing positive
reinforcement from the consumers they worked with, the peers they
received
support from, their mentors, and the ongoing training/education
offered
them.
The
newly employed Peer Specialists and Carer Consultants who reported
greater
understanding of their respective roles evidently embrace the premise
of the
recovery framework adopted by CNAHS. As further experience of the role
continues, Peer Specialists and Carer Consultants are also refining
their
practice skills in promoting consumer recovery and encouraging personal
responsibility by modelling coping strategies.
As
would be expected with such an endeavour, particular difficulties were
addressed and continue to be addressed with
the
progress of time and experience. In general, pre-existing staff
articulated difficulties arising in areas of selection, training, and
management of additional staff. At the time of writing, the developing
mentor
program endeavours to provide sustained role and skill development
approaches
for any new Peer Specialist and Carer Consultant staff.
Acknowledging
that no new staff member without previous experience is fully skilful
at
service delivery, the Peer Specialist and Carer Consultant will
continue to
develop a broad base of competencies, skills, and evolving practice
standards.
In order to overcome the knowledge and skill gaps reported by and
affecting
existing unit staff. more extensive
training
and orientation is planned for the new Peer Specialists and Carer
Consultants
prior to commencement on any unit.
Furthermore,
as developing positions, the unique roles of Peer Specialists and Carer
Consultants were reported as misunderstood and potentially
under-utilised
(i.e., lacking referrals). Such issues are consistent with the initial
restraints of many newly developing employment positions and the
informal
qualitative reports of similar interstate roles suggests that the
initial 12-18
month timeframe is a period of augmenting role clarity and embedding
systemic
change. It may be beneficial for pre-existing staff to be informed of
similar
interstate projects and to be given the opportunity to openly discuss
logistics. Finally, both groups of Peer
Specialists
and Carer Consultants reported an overall personally rewarding
employment
experience.
In
summary and coinciding with existing literature, the
current evaluation indicated that the employment of Peer Specialists
and Carer
Consultants within various CNAHS acute units was positively associated
with
consumer, organisational, and personal gains. For example, the
lived
experience of additional staff was reported as beneficial to everyone
involved
and was viewed as providing a valuable connection point for consumers
and
carers. The
consumer and carer feedback suggested that the inclusion of Peer
Specialists
and Carer Consultants was a worthwhile and appreciated venture.
Additionally,
participating consumers and carers provided consistently positive
feedback
whereby they reported feeling more supported and experienced a greater
sense of
hope for recovery for respectively themselves or the person they care
for.
Although pre-existing staff’s
perceptions somewhat
deteriorated over time, their average ratings were still of a positive
and/or
agreeable nature. Genuine incorporation of new team roles usually takes
considerable time to embed, so a settling process is natural. The
ongoing
action of pre-existing staff and newly employed staff to effectively
problem
solve issues arising clearly reflects a solid commitment to genuinely
and fully
incorporating such lived experience roles into the team. While the
complications inherent with the experience of a structural and cultural
shift
were evident, numerous gains were reported from the organisational
perspective.
For example, the introduction of Peer Specialists and Carer Consultants
was
reported to alleviate time and resource constraints.
The
information gathered via this evaluation is being used to direct future
endeavours and to address identified issues. An
impetus to integrate consumers and carers into all aspects of mental
health
service exists. The aim is to benefit everyone involved, however it can
be
speculated that the ultimate driving force is to provide the best
possible care
for current consumers and their families. CNAHS continues to strive
toward
optimal service delivery and the current initiative contributes to the
growing
body of national findings that supports the inclusion of Peer
Specialists and
Carer Consultants as valuable mental health team members. CNAHS is
committed to
the best possible mental health service provision and anticipates
further
developments as lived experience and trained staff coalesce to provide
cutting
edge services.
References
Australian Health
Ministers (1992). National
Mental Health Plan. Canberra: Australian
Government Publishing Service.
Australian Health
Ministers (1998). Second National Mental Health Plan: 1998-2003.
Canberra:
Australian Government Publishing Service.
Australian Health
Ministers (2003). National
Mental Health Plan 2003-2008.
Canberra:
Australian Government Publishing Service.
Berger E., Carter A., Casey D. & Litchefield L.
(1996). What’s
happening with
consumer participation. Australian and
New Zealand Journal of Mental
Health Nursing 5, 131–135.
Campbell, P. (1990). Speaking out on
services. Social Work Today, 21, 22.
Commonwealth of Australia
(1997). National Standards for Mental Health Services.
Canberra:
Australian Government Publishing Service.
Connor, H. (1999). Collaboration or chaos:
A consumer perspective. Australian and
New Zealand Journal of mental health
Nursing, 8, 79-85.
Gordon, S. (2005). The role of the consumer
in the leadership and management of
mental health
services. Australasian Psychiatry, 13,
362-365.
Happell, R. & Roper, C. (2006). The
myth of representation: The case for consumer
leadership. Australian e-Journal for
the Advancement of
Mental Health, 5,
1446-7984
Lammers J. & Happell B. (2004). Mental health
reforms and their
impact on
consumer and carer participation: A
perspective from Victoria, Australia.
Issues in Mental Health Nursing, 24, 261–276.
Lawrence, J. (2004). Mental health survivors: Your
colleagues. International Journal
of
Mental Health Nursing, 13, 185-190.
Lloyd. C. & King, R. (2003). Consumer
and carer participation in mental health
services. Australasian
Psychiatry, 11, 180-184.
McAllister, M. & Walsh, K. (2004).
Different voices: reviewing and revising the
politics of
working with consumers in mental health. International
Journal of
Mental Health Nursing, 13, 22-32.
Meehan, T., Bergen,
H.,
Coveney, C., & Thornton, R. (2002). Development and
evaluation of a
training program in peer support for former consumers.
International
Journal of Mental Health Nursing, 11, 34-39.
Middleton, P., Stanton, P., & Renouf,
N. (2004). Consumer consultants in mental
health services:
addressing the challenges. Journal of Mental Health, 13,
507-18.
Miller, S. & Katz, G. (1992). The
educational needs of mental health self-help groups.
Psychosocial Rehabilitation Journal, 16,
160-163.
National Mental Health Working Group.
(1996). National standards for mental
health
services. Canberra:
Australian Government Publishing Service.
Pyke, J., Samuelson, G., Shephard, M. &
Brown, N. (1991). Shaping mental health
services. Canadian Nurse, 87, 17-19.
Roper, C. (2003). Consumer
perspective employment
in the psychiatric service
system: a
Victorian view on safety issues. Australian e-Journal for the
Advancement of
Mental Health, 2 www.auseinet.com/journal/vol2iss1/roper.pdf
Soloman, P. (2004). Peer support/peer
provided services underlying processes,
benefits, and
critical ingredients. Psychiatric Rehabilitation
Journal, 27, 392
401.
Victorian Government Department of Human Services,
the Mental Health
Branch
(2004). Summary of the 2003-2004 survey
of consumer and carer experience
of Victorian public adult mental health
services.
Voelker
R. (1994). Population-based medicine merges clinical care,
epidemiologic
techniques. Journal of the American
Medical Association, 272, 1302-2.