The
International Journal of Psychosocial Rehabilitation
Promoting
the Psychosocial Functioning of Young Adults
through Psychiatric Residential
Rehabilitation:
A Qualitative Evaluation of the Making a Significant Change
(MASC) program
Citation:
Kelly, M. & Boyd,
C. (2006). Promoting the Psychosocial Functioning of Young Adults
through Psychiatric Residential
Rehabilitation: A Qualitative Evaluation of the Making a Significant
Change (MASC) program.
International Journal
of Psychosocial
Rehabilitation. 10 (2), 139-153 .
Corresponding author: Dr Candice
Boyd
Rural Adolescent Mental
Health Group
Centre for Health Research and Practice
University of Ballarat
Ballarat, Victoria,
3353, Australia.
Abstract
Aims
and purpose of the study
This research evaluated the Making a
Significant Change (MASC) program – the only residential psychosocial
rehabilitation program for young adults in the Grampians region of Victoria, Australia. The program provides
intensive support and
rehabilitation services to young people aged 16 to 24 years who have a
mental
illness and are at risk of developing further mental health
disabilities. This evaluation
aimed to establish a holistic view of the program with a focus on the
process
of rehabilitation rather than a pure examination of the outcomes. The purpose of the evaluation was to provide
descriptive data for key stakeholders in the service so that the impact
of
intervention approaches could be gauged.
Methods
A qualitative methodology explored the
attitudes and perceptions held by consumers and staff of the MASC
program. Data
were collected through in depth semi-structured interviews with seven
participants (four consumers and three staff).
These data were triangulated with consumers’ case histories and
individual program plans.
Findings
The evaluation found that all of the
domains of psychosocial functioning were covered efficiently within the
MASC
program and that skills learnt during this process built resiliency
enabling
most consumers to obtain a comfortable lifestyle for themselves. Areas of program delivery which could benefit
from revision included modification of the initial stages of entry into
the
program and immediately after discharge from acute inpatient hospital
admissions. The importance of considering the needs of staff to
overcome
feelings of frustration and complacency was also highlighted.
Key Words:
Psychiatric Residential Rehabilitation,
Young Adults, Qualitative Methods
Introduction
An estimated 634,000 young adults in Australia
experience a mental health disorder (Blair, Burthon, Silburn &
Zubrick,
2000). The issues related to mental illness for young adults are
complex and
reach into many domains of an individual’s life. The first episode of a
disorder can exacerbate normal developmental issues experienced during
this
life stage, affecting psychosocial functioning that is critical to an
individual’s social and emotional wellbeing (Harrop & Trower,
2003).
Studies have indicated that psychotic disorders, anxiety disorders and
mood
disorders produce deficits in psychosocial functioning in adolescence
and
adulthood. Such deficits include impaired academic and occupational
functioning, social difficulties, poor peer relationships, lowered life
satisfaction, increased adversity, increased treatment utilization,
criminal
arrests and reduced global functioning (Gotlib et al., 2003; Reinherz,
Giarconia, Carmola Wasserman & Silverman, 1999).
High-risk behaviours can
foster further
serious deficits in psychosocial functioning for young adults
experiencing
mental illness (Davis et al., 2000). Such high-risk behaviours include
increased alcohol and drug use, self-harming, unsafe sexual behaviour,
reckless
driving, aggression toward others and an increased risk of suicide
(Drake,
McLaughlin, Pepper & Minkoff, 1991; Siegfried, 1998; Rayner &
Warner,
2003; Burnely, 1994). The risk of suicide is exacerbated by complex
social
issues such as family breakdown, unemployment, low self-esteem,
homelessness,
poverty and drug and alcohol abuse (Burnely, 1994). Further
disabilities once
established can prove to be resistant to change in later adulthood
(Blair et
al., 2000).
Promoting
Psychosocial Functioning as a Treatment Modality
Findings from past research
suggest that effective
intervention with young adult consumer groups require approaches that
target
multiple complex domains in order to foster resilience and build skills
(Fuller, 1998; Fuller, McGraw & Goodyear, 2002; Kosky, 1992 &
Nemec
& Furlong – Norman, 1989). A large Australian found young people
perceived
support, belonging, sense of citizenship, ability to contribute, a
sense of
mastering and connectedness to family and peers as important skills for
promoting resilience and well being (Fuller, 1998). When effective,
such
intervention approaches act to reduce the impact of suicidal ideation,
self-harming behaviours, aggression, substance abuse and mental health
issues
(Kosky, 1992; Nemec et al., 1989). Psychosocial interventions employ
techniques
aimed at decreasing symptoms and maladjustment by improving adaptive
and social
functioning (Gotlib et al., 2003; Geller, Zimmerman, Williams,
Bolhofner &
Craney, 2001). Such processes include the attainment and development of
skills
through learning and motivation to improve affect, cognitive processes,
behaviour, interpersonal interactions and self-confidence.
The Making a
Significant Change Program
The
‘Making a Significant Change’ program (MASC) is provided by Centacare
in Victoria within their
psychiatric
disability rehabilitation and support service (PDRSS). Such programs
are
designed to compliment clinical mental health services by providing
psychosocial assessment, rehabilitation and support (Department of
Human
Services, 2003). Non-government organisations in the community manage
these
programs statewide (Department of Human Services, 2003).
The MASC program services the Grampians
region operating from the regional city of Ballarat.
The total population of the
Grampians region is estimated at 202,952 residents (Australian Bureau
of
Statistics, 1999). Of the total population, an estimated 23,888
residents are
aged between 16 and 24 years (Department of Infrastructure, 2000).
The MASC program provides intensive support
and rehabilitation services to young people aged 16 to 24 years who
have a
mental illness and are at risk of developing further mental health
disabilities. Examples of common illnesses within the consumer group
are
schizophrenia, bipolar affective disorder, and depression. The MASC
program is
a relatively new program, operating since 1999. The program aims to
provide
short-term intensive support to improve the mental health status and
quality of
life of consumers (Centacare & Ballarat Psychiatric Fellowship,
1998). The promotion of psychosocial
functioning
aims to decrease high risk behaviours, build skill mastery and improve
self
confidence before young adults are supported to reintegrate into their
own
rural communities (Centacare & Ballarat Psychiatric Fellowship,
1998). A
solution-oriented approach is adopted to compliment the framework of
psychosocial rehabilitation in order to guide “the process of
facilitating an
individual’s restoration to an optimal level of independent functioning
in the
community…” (Cnaan et al., 1988).
There are three levels of support offered by
the MASC program: Intensive rehabilitation is provided within a
residential
rehabilitation setting that is staffed seven days per week from 8 am to 10.30
pm, with the option of twenty-four
hour support if the need arises (Thorne & Davis, 2000). The second
level of
support involves home-based outreach in which consumers work with staff
on a
less intensive basis. Support is offered to assist consumers and where
necessary carers, with the transition phase of returning to local
communities
(Thorne & Davis, 2000). The third level of support
involves,secondary
consultation, where staff work closely with rural providers of services
to
establish continuity of care throughout the transition phase and to
ensure
ongoing care where necessary after the consumer exits the program
(Thorne &
Davis, 2000).
Each level aims to support consumers
maintain their mental health and overcome high-risk behaviours by
building
skills in the areas of mental health, budgeting, recreation, social
skills,
motivation, education, employment, working toward living independently,
utilizing community services and family reconciliation (Thorne &
Davis,
2000). Individual program plans are used to explore and identify the
goals of
consumers, establish a plan of action and to monitor progress (Thorne
&
Davis, 2000).
Aims of the Study
This study aimed to establish a holistic
view of the program with a focus on the process of rehabilitation
rather than a
pure examination of the outcomes. The first aim was to determine the
attitudes
and perceptions that participants had toward the role of rehabilitation
within
the recovery process for young adults experiencing mental illness. The
second
aim was to identify the attitudes and perceptions participants had
toward the
intervention strategies currently employed. The third aim was to
ascertain the
extent to which it is perceived that the lives of consumers had changed
from
participating in rehabilitation. The fourth aim was to explore the
participant’s perceptions of what the future holds for consumers.
Method
Participants
The
study involved seven participants, three staff members and four
consumers.
Demographic information obtained from consumers included age, gender,
primary
diagnosis, secondary diagnosis, identified high-risk behaviours and
length in
program. To build a profile of the MASC consumer population,
demographic
information was obtained for each individual who had accessed the
program
during the time of its existence (i.e., 1999 to 2004). The mean age of
all
consumers was 21.16 years of age (N=57). The mean length of time spent
in the
program was 8.42 months. The most commonly occurring primary diagnosis
was
schizophrenia (45.6%), followed by a drug induced psychotic episode
(19.3%),
depression (15.8%) and bipolar affective disorder (8.8%). Co-occurring
mental
illness was noted in 45.6% of consumer cases. Drug induced psychotic
episodes
(30.8%) were the most common co-occurring diagnosis followed by
depression
(19.2%). The most frequent high-risk
behaviours acknowledged at time of entry into program for all consumers
were
drug and alcohol abuse or dependence (82.5%), previous acute inpatient
admissions (73.7%), previous suicide attempt (42.1%), self-harming
behaviour
(36.8%) and history of aggressive acts towards others (36.8%).
Materials
Semi structured
Interviews
Semi-structured interviews were considered
to be the most effective method of acquiring an overall view of the
program
whilst allowing the exploration of alternative issues if they arose.
Case
Histories
ndividual program plans, activity
timetables and communication notes that record the daily activities of
consumers were used to produce a series of case histories. Individual
program
plans are a mandatory component of the program and reflect a number of
the programs’
key aspects. These aspects include mental health, drug dependencies,
physical
health, family, education, personal appearance, hygiene, diet,
budgeting,
creative personal expression, vocational training, exit plan and are
used to identify difficulties for
consumers, set
goals, monitor current status and record action taken to date.
Individual
program plans are reviewed on a six monthly minimum basis.
Data Triangulation
Data triangulation refers to the use of
multiple sources of data for providing information (Flick, 2002;
Goodrick,
2004; Patton, 2002). For the purpose of this study, the process
involved
building thematic conceptual matrices of the information obtained from
staff
interviews, consumer interviews and case histories (see Miles &
Huberman,
1994 for more on matrix displays).
Procedure
Ethical
approval was granted by the University
of Ballarat’s Human
Research Ethics
Committee. All ethical principles were followed in the course of
conducting
research.
Interviews
were conducted for approximately an hour and a half and were
audiotaped. Interviews
were conducted by the first author, who was also a casual employee
within MASC
at the time. This dual role was managed by
stressing to all participants that the research was being conducted by
the University of Ballarat
The staff interviews were performed on an
individual basis by the first author. Interviews with consumers were
conducted
as a group interview at the request of participants. The audio
recordings of
interviews were transcribed following completion. Transcripts were
compiled
following the qualitative data preparation and transcription protocol
developed
by McLellan, MacQueen and Neidig (2003).
Process of Data
Analysis
An approach to thematic coding based on
constant comparative methods was used to analyse the transcribed
interview data
(see Dye, Schatz, Rosenberg, & Coleman, 2000 for description of
this
processs) . Data analysis was carried out by the first author and
revised in
consulation with the second author who acted in a supervisory capacity.
In
addition to the data obtained from interview, summaries of
communication notes
and activity timetables obtained from individual program plans were
made. Data
were then built into matrix displays to allow ease of comparison across
cases
and cross-referencing between program documents and the attitudes and
perceptions of participants. The final
results comprise a series of thematic descriptions, incorporating data
from
these multiple sources as well as selected quotations from the study’s
participants. Themes also relate back to
the study’s four main research aims.
Results
Theme 1: Attitudes and
Perceptions Participants Had Toward the Role of Rehabilitation within
the
Recovery Process
They wouldn’t be
in this program if they hadn’t had a major
psychiatric episode…that they didn’t have high-risk behaviours like
drug abuse
or self harm or suicidal thoughts…or all of the above (staff)
Perceived Purpose of
Rehabilitation
Participants
perceived the purpose of the program was to restore consumer’s previous
levels
of overall functioning to enable them to live independently within the
community. It was perceived that to
achieve this, the program served as a place to establish social
networks within
a supportive and non-judgemental environment free from stigma.
Some of these guys
have done some pretty horrific things in the
past and been in some really quite… antisocial settings so to actually
be
accepted for some of that stuff where no one else has accepted them is
a really
good starting point” (staff).
It pulls people
out of holes a lot you know… someone I knew was
like… in real trouble and MASC pulled em out of trouble and gave em a
fresh start
in a new place” (consumer).
Programs
like ours are there to transit these kids through that pretty rough
stage and
they come out the other end… having learnt to be independent (staff).
The
Perceived Role of Rehabilitation in Overcoming Mental Health Issues and
High
Risk Behaviours
I
didn’t even know what psychosis was I just thought things (laughs)
weren’t
going well (consumer).
Common
perceptions of the role of rehabilitation in overcoming mental illness
were to
restore self-esteem and confidence through support and education on
precipitating factors. Prevention and intervention to overcome
high-risk
behaviours and links into other agencies were identified as being
important
within the recovery process. Cross references with individual program
plans
highlighted the role of the program in supporting consumers through the
differing phases of illness.
Yeah I lost a lot
of confidence from my last…psychosis so… I gotta
build it back up again (consumer).
It’s been like a
year now and I haven’t used em coz I know if I do
I will probably get sick again and end up in psychosis and end up back
in the
psych ward and I will probably never come good again (consumer).
There’s a lot of
agencies and things that they’ve got access to
that help you in a lot of different ways (consumer).
If there’s drugs
and stuff happening…if you’re at home and you
stuff up a couple of times and you’re gone, but you get a few chances
to
realize what’s the right thing to do (consumer).
Promotion
of Daily Living Skills and General
Health and Well-being
Daily living skills
identified
as being promoted within the program were cooking skills, personal
hygiene,
personal care, budgeting, and cleaning skills. Cross references with
individual
program plans also identified physical health, personal appearance and
diet.
So, the
funding is around daily living and ensuring that they’ve got the skills
to look
after themselves. So, it’d be you know making sure that they learn how
to cook,
clean…” (staff).
To get
you into things you got to do to get into the normal rhythm of what you
have to
do in life (consumer).
It was acknowledged
that the promotion of well-being worked to rebuild trust, overcome fear
and
hopelessness. Techniques used to do this incorporated the encouragement
of
positive family relationships, re-establishing social networks,
participation
in recreational activities, vocational and educational support.
You do
a bit of fun stuff and give yourself good ideas of what to do in the
future,
have a few experiences, you know always having people there to talk to
that are
intelligent and know what you’re talking about (consumer).
I liked being the
footy head and knowin’ a lot of people I like that, I really did like
getting
along with heaps of people and havin’ lots of friends and stuff n I
think
that’s what broke me for ages (consumer).
Theme
2: Attitudes Participants Had Toward the Intervention Approaches
Currently
Employed and the Perceived Effectiveness of Those Interventions
If you can’t build
that rapport with the young person then really you’re not going to be
able to
work on any of the other issues. You get a small window and as soon as
that
window opens, you need to jump in, get in before they shut the window
and
hopefully you can actually get on with it and move forward (staff).
Attitudes towards the Program as
an Intervention Strategy
Recurring patterns of consumers
feeling ‘pushed’ whilst in
the program occurred across participants.
It was identified that the reactions to being pushed were
dependent on
the phase of illness. Other patterns indicated that interventions
employed
mostly made consumers feel safe, supported, and secure.
Consumer participants expressed appreciation
toward the program for aiding participants to feel well again.
It’s
pushing you to be doing stuff and that’s when it sucks, when your in
the depths
of depression and you just want to be sitting there (consumer).
I
really didn’t like being pushed much… but it is a good thing coz it
keeps you
active… it keeps your mind active, keeps you healthy (consumer).
It was
good for me in the whole sense of I wanted to get to a safe place, MASC
felt
like a very safe place coz like you were being supervised sort of…
(consumer).
They definitely
helped me out a lot just to get well again after the psych ward
basically
(consumer).
Formal Strategies
Formal strategies explored were the
use of a
solution-oriented approach and individual program planning. Attitudes
toward
these approaches varied across cases. Issues influencing the
effectiveness of
individual program plans included time availability and motivation.
Cross-referencing indicated that they were particularly useful in
exploring
creative personal expression, family relationships, physical health and
budgeting. Substance use and mental health components had mixed
outcomes.
Education and training had poor outcomes with cross-referencing
demonstrating a
lack of interest in pursuing these goals any further.
The
workers are too busy to pull out everybody’s IPP everyday to have a
look and read
through four pages (staff).
It’s
mainly just paperwork really, at least that’s what I seem of em
(consumer).
I
thought IPPs helped… I had to do things a certain way and I got it done
and I
got it done the way I wanted it coz it helps you to set goals. Oh, but
sometimes when you don’t want to do anything, when you don’t want to be
doing
anything it sucks (consumer).
We are not dwelling
on what happened in the past or what the problem is… we’re actually
trying to
look at you know achieving goals for the future (staff).
Informal
Strategies
Numerous informal strategies
were identified. These included activity timetables that were
recognised across
cases as effective on a day-to-day basis, role modelling,
psychoeducation and
the use of general discussion. Cross-referencing with individual
program plans
identified the use of ultimatums, intensive key support, music groups,
accessing short courses, liaison with other agencies, redefining
self-boundaries, intensive communication, identity kit lists and stress
management sessions.
With
your work timetable, on a weekly basis you can pull from that IPP and actually keep it active on a weekly
basis (staff).
Role
modelling is the big thing for this program, staff are expected to role
model
socially acceptable practice (staff).
Earlier
on I used to talk to [name] every morning for two hours, every morning
we used
to sit down and have a cup of coffee and a smoke and just talk
(consumer).
Specialised Strategies
Across cases, harm
minimisation
approaches were consistently reported as an effective way of reducing
the
severity of high-risk behaviours. Other interventions identified were
the use
of urine screens, drug diaries and consultancy and collaboration with
external
specialised services. External services included a drug and alcohol
withdrawal
unit, drug and alcohol counsellors, peer support networks, community
psychology
services and the utilisation of case management from psychiatric
services. Cross-referencing further
revealed the use of
alcohol agreements, random breath testing, and implementation of post
withdrawal strategies.
You
know it relaxes me I enjoy it but only in moderation. It fucks me up if
I have
too much… (consumer).
It’s
quite strange that three pieces of paper and a little coloured book may
be the
answer for some of these young people (staff).
Depending on what
the consumers needs are quite often find that they don’t want extra
people.
They would rather… deal with their issues in house and you know that is
a
concern because the staff aren’t actually employed as drug and alcohol
workers
or dual diagnosis workers (staff).
Perceptions of the Work Carried Out by Staff
Across cases, it was perceived that
staff members were
conducting their work well. Staff participants identified that the area
was
frustrating and that the work was difficult. However, their responses
indicated
that they perceive their positions and the work that they conduct as
rewarding.
Consumer participants described feelings of admiration of the staff’s
ability,
feelings of grief during periods of staff turnover and that they are
very
involved in the lives of consumers.
I don’t
know if they could improve, they interact unreal I reckon, they really
get
in-depth in all their lives pushin’ the right directions and stuff you
know,
they do a good job I reckon (consumer).
One of the big
things for staff is that we get complacent with what we’re working
with. We
forget that these people are in the program for a reason and they are
the
extreme end of the scale and I mean we’re working with them everyday
(staff).
Strategies
Employed by Staff to
Overcome Feelings of Frustration
Strategies that were
reported as useful for staff were the feedback from external sources,
the role
of supervision, using a positive outlook, and the ability to separate
professional and personal roles.
I’ve
learnt that what I thought were the important issues sometimes aren’t
the
important issues (staff).
I think
over that five year period I learnt to look for more positive then I
have
negatives (staff).
It’s
extremely important that staff actually meet supervision guidelines
(staff).
I have
learnt over the years that you have to have a cut off point between
your life
and the young people that your working with (staff).
Theme 3: Extent to
Which the Lives of Consumers Had
Changed Resulting From Participating In Rehabilitation
I guess making friends in new
places is good
and figuring out them people aren’t everything in your life and other
things
are more important like your actual proper friends and your family and
that
you’re living a good life and stuff is better then worrying about a
handful of
people and what they dislike about ya (consumer).
Short
Term Impact
The expansion of
social networks
was identified by all participants in the study. Other persistent
patterns
emerging across cases were improved family relationships, restoration
of
confidence, a sense of belonging, attachment and acceptance and the
development
of positive outlooks, which included hope for the future, aspirations,
and
goals.
That
was the most important thing, finding companionship and good friends
really
(consumer).
So,
I’ve always wanted to do something with my music so in the next however
long if
something happens and I actually get to play somewhere that will be a
good
thing (consumer).
We’ve
actually taken them out and done stuff like jumping off cliffs with all
the
safety harnesses on and all that sort of stuff. So that they can
actually
experience you know that it’s ok to jump off a cliff… its safe, you
know it’s
just as safe to go out and go for a job (staff).
Long
Term Impact
Perceived changes that
continue
to influence the lives of consumers into the future included improved
employment prospects, relocation from their place of origin, obtaining
a sense
of achievement and the establishment of family relationships in
situations
where they previously did not exist. Cross-references with individual
program
plans showed consistent changes across cases showing that participants
were
maintaining healthy family relationships, completed training programs,
and
currently living independently with intensive outreach support.
They’ve
actually achieved stuff and they’re actually happy with their lives.
And
there’s people out there who are still using drugs but their living
independently and they’re happy with their lives and they’re actually
moving
forwards (staff).
This
young person actually sess their child on a monthly basis now with
supervision
and that child is actually going to have a father in his life (staff).
Some of the guys
leave the Grampians region altogether, they decide that it’s better to
have a
fresh start (staff).
Influence on
Well Being and the Daily Living
Skills of Consumers
Improved overall
functioning and
improved nutrition and diet were reported across all cases. Other
consistent
patterns were improved physical health, overcoming fears and improved
levels of
life satisfaction. Cross references with individual program plans
highlighted
changes across cases related to improved personal hygiene and physical
health
and an ability to manage own finances.
The
feedback that we get from family and other people are that yes this
person is
doing really, really well compared to what they were before they came
into the
program (staff).
We can
go shopping, we can get videos, we can drive down the street, we can
get
takeaway, we can go away, we can go back to [town] but leave whenever
we want,
we can go on a holiday up the Murray and go
fishin’ (consumer).
Influence
on the Management of Mental
Health Issues and High Risk Behaviours
A theme that
emerged across all
cases was that the mental health status of consumers improved with a
reduction
in high risk behaviours. Furthermore,
raised awareness of the impact of high risk behaviours was thought to
improve
insight and assist consumers to overcome negative issues related to
mental
illness. Cross-referencing indicated that all participants showed a
reduction
in substance use over the course of their time in the program and that
their
illnesses were currently in remission.
Feeling
healthy like you know I’m not sick in the head or the body or anything
like
that and I’ve got friends and social networks and I’ve got family
(consumer).
He’s
reduced his drug use… his mental health improved, and his social shills
improved… so it was working on drugs worked into mental health worked
into
social skills (staff).
Theme
4:
Participants’ Perceptions of What the Future Holds For Consumers
Immediate Future
A theme
that emerged across all cases was that participants
perceived a future for consumers where they would have to deal with a
lack of
anonymity and social stigma. For example, there was a perceived
inability for
consumers to return to their place of origin. Other patterns across
staff cases
was the perception that some consumers will be able to overcome their
mental
illness and others will need long term psychiatric care in the future.
I hate
it now, I just go there and I get this eerie feeling, I’m avoiding
people and I
don’t want to go up the street coz I might see em and I might have to
talk to
em (consumer).
I’m just thinking
of a couple of people who have been through this program and they’ve
ended up
in longer term psychiatric facilities (staff).
Long
Term Future
Reported
consumer hopes for the future were
similar across cases; these included gaining employment, developing
romantic
relationships, having a license and a vehicle. Other emerging patterns
included
relocation from place of origin and the resolution of issues after
leaving the
program.
…get
another car and get back on the road again, bit more freedom, maybe get
a
girlfriend one day… maybe have a family one day, buy me own house…
yeah… it’d
be good (consumer).
For
years I’ve wanted to move away somewhere
real far away (consumer).
Some of the
feedback from families… are actually saying hey look, I know it was
traumatic
when our son or daughter was here but they’ve followed through you know
(staff).
Mental
Health Status
The
overcoming of mental illness and resolution of mental
health issues in the future was a recurring pattern across cases.
Consumer
responses indicated that they would not disclose their past psychiatric
history
to others in the future. Staff responses suggested that it was
perceived that
the prognosis for consumers was either remission or long term
psychiatric care.
If I
had a girlfriend one day or I just met someone who know nothin’ about
mental
illness I wouldn’t be saying this sort of stuff (consumer).
I
actually see a good prognosis for most of the people who come through
(staff).
You
can’t underestimate that some people do need to have longer term
support and
you know we support… in mental health terms two years is a very short
period of
time (staff).
Well Being and Daily
Functioning
Participants perceived that
consumers would feel comfortable with their lifestyles, have an
improved level
of self-esteem and confidence and lead an active lifestyle. It was also
perceived that the impact of societal pressure would produce additional
challenges for consumers to overcome in the future.
So I
don’t think its going to get any easier… there may be more challenges
(staff).
It
might not be the way that I see it as ideal or the staff see it as
ideal or
someone else looking into it but I think that the majority of people
will
actually achieve something and be living the life they want to live
(staff).
He just
can’t wait to zoom off into the night and go camping all over the
different
parts that he wanted to see… and he’s you know, I’m well I can do this,
I can
go and see outside the west Grampians area (staff).
Discussion
This
study aimed to establish a holistic
view of the MASC program with a focus on the process of rehabilitation
rather
than a pure examination of the outcomes.
Overall, the evaluation revealed that all of the domains of
psychosocial
functioning were covered efficiently within the MASC program and that
skills
learnt during this process built resiliency enabling most consumers to
obtain a
comfortable lifestyle for themselves. Specific
themes emerging from the data enable each of the study’s four main aims
to be
addressed.
Shared and
differing perspectives of the impact of psychosocial rehabilitation on
the
lives of consumers
The first aim of the research was to
determine the attitudes and perceptions that participants had toward
the role
of rehabilitation within the recovery process for young adults
experiencing
mental illness. The broad range of themes and patterns emerging from
the data
demonstrated, from a holistic perspective, the impact of psychosocial
rehabilitation on the lives of young people with a mental illness. Overall,
the program was seen as a place that was non-judgmental in which young
people
could feel safe, supported, and rebuild their confidence. This was
perceived as
serving an important role in alleviating anxiety and fostering an
environment
where consumers can work on personal issues without the added burden of
feeling
unsettled. All participants in the present study provided positive
feedback
regarding the program as a whole. The emphasis of such feedback was on
the
achievements of the individual consumers. Such positive responses may
be a
reflection of the use of a solution-oriented approach within the
program. Using
this approach within the program has trained staff and supported
consumers in
assessing situations and reframing issues from a positive viewpoint on
two
levels: first, within the program and second, in the other areas of
consumer’s
lives.
Consumers also commented on the expansion
of their social networks, benefits of keeping active, the overcoming of
fears,
and the restoring hope for the future within a supportive environment.
In
comparison, staff emphasised issues related to the restoration of
overall
functioning, equipping consumers with skills to enable them to live
independently and the development of positive outlooks. Such
differences in the
perspectives of staff and consumers may be explained in terms of
motivation.
Participants within the program are motivated to participate in the
program for
individual reasons that reflect their stage of psychosocial
functioning, i.e.,
identity formation (Davis et al., 2000). Staff tended to identify in
their
responses issues that reflect the values reinforced through employment
conditions and professional development training.
In terms of consumer satisfaction,
consumers reported feeling that the site of the program was a good
place, and
the experience of participation overall was also good. They felt safe,
secure
and supported most of the time. Such feelings have been described as
protective
or resilient factors against such high-risk behaviours as self-harm,
substance
abuse and aggression (Fuller et al., 2002). Contradictory responses
from
consumers pointed to feelings of frustration during certain stages of
the program.
In particular, a number of consumer responses described a feeling of
being
pushed. While this is perceived as beneficial by consumers in
hindsight, it was
not appreciated by them during the initial stages on the program or
after being
discharged from psychiatric services. Feeling pushed can leave
consumers
feeling frustrated and misunderstood. These feelings have the potential
to
interfere with building rapport with young people who have particularly
complex
needs and prolong the time it takes to realise the therapeutic benefits
of the
program (Fuller, 1998). Despite this, consumers who participated in
this study have
passed through all of the stages of the program and reported feeling
satisfied
with the program overall. Consumers also indicated their respect and
admiration
regarding the role that staff play within the program.
Two opposing viewpoints emerged from the responses
of staff
regarding levels of their satisfaction with the program. On one hand,
it was
recognised that day-to-day work is largely stressful with staff working
long
hours, combating frustration and feelings of complacency. On the other
hand,
the attitudes of staff were positive in nature and it was recognised
that,
although the day-to-day work was challenging, as a whole the work was
rewarding.
Staff emphasised the role of looking for positives, recognising small
achievements and establishing day-to-day living skills as the most
rewarding
components of the program yet little recognition was given to these
issues by
consumers. The emphasis staff placed on these issues may arise from a
need to
define achievable goals in which success can be measured to gain job
satisfaction from a challenging work environment.
Shared and
differing perspectives on intervention approaches and program delivery
The second aim of this study was to identify
the attitudes and perceptions participants had toward the intervention
strategies employed by the MASC program. Consumers highlighted feelings
of
being pushed during the initial stages of the program as a limitation
of
service delivery. Entry into the program is often a period where
discharge from
acute services has recently occurred and psychosocial functioning is at
its
lowest point. The impact of acute mental illness during this time
affects most psychosocial
domains on a social, emotional, physical and cognitive level. Factored into this is the perceived
effectiveness
of individual program plans as an intervention approach as well as
staff
feelings of frustration and complacency.
Complacency and high levels of frustration
affect the patience of staff and the time management of day-to-day
tasks. As a
result, individual program plans can be neglected. Complacency may be
the
consequence of a small team working long hours with complex consumer
needs on a
day-to-day basis. These issues combined with the mandated use of an
intervention approach (individual program plans) that are perceived as
limited,
could further exacerbate staff-related frustration and complacency.
Individual program plans were recognised
as the most limited intervention approach employed in the program by
both staff
and consumers. This formal approach tends to be effective only when
consumers’
mental health status is stable and they are motivated to reach defined
goals.
Setting goals related to education and employment is not particularly
realistic
when basic psychosocial domains are underdeveloped. These two areas of
functioning, employment and education are not perceived as important by
consumers at this stage in their lives. The lack of interest and
motivation
from consumers in setting and reviewing goals can frustrate workers
when time
is limited and goals are being ignored or not being reached.
Frustration and feelings of inadequacy in
managing the difficulties posed by consumers can lead to negative
professional
attitudes (Richmond & Foster, 2003). Addressing substance use and
misuse
puts additional pressure on staff and consumers when staff members are
not
trained in this area, and external sources employed to deal with such
issues may
not be well received by staff or consumers. For the future of the MASC
program,
it will important that staff are trained further in issues of substance
use and
abuse and be involved in continuing education on the effects of mental
illness
and its treatment.
As
a whole, the program as an intervention approach was perceived by staff
and
consumers as considerably effective in supporting young people with
mental
illness to obtain improved family relationships, extended social
networks,
improved confidence and greater self-esteem. Development of these
particular
areas of a young adult’s life is particularly important to aid
consumers in
overcoming high-risk behaviours and the impact of mental illness. The
rebuilding of skills and informal approaches to intervention were
considered to
be positive strengths of the MASC program.
Whilst working on the complex
issues experienced by
consumers, obtaining day-to-day functioning skills further promote
psychosocial
functioning and build resilience for consumers. Interventions that
promote and
develop skills in daily living and creative personal expression were
identified
by staff and consumers in this study as important. Improved
psychosocial
functioning and resilience act as prevention measures against the
development
of further disabilities in adulthood (Harrop & Trower, 2003; Fuller
et al.,
2002; Davis et al., 2000). The program appears to foster a positive
environment
within which consumers feel safe and secure. Feelings of safety and
security
allow consumers a freedom to develop the differing psychosocial
domains, learn
about themselves and explore different worldviews influenced through
the
diversity of staff backgrounds and personalities, social relationships
through
feelings of belonging and connectedness, and culture through
challenging
activities and regular meal and movie nights (Gotlib et al., 2003).
These
facets of self and world exploration are integral components of
identity
formation that are an important developmental task for young adults as
they
step into adulthood (Arnett, 2000).
Extent of recovery
The third aim of this study was to ascertain
the extent to which it is perceived that the lives of consumers had
changed
from participating in rehabilitation. All of the consumers interviewed
had
accessed the program for more than two years. During this time, they
had all
had at least one further acute hospital admission. At the time of being
interviewed, their mental illnesses were in remission. The extent of
recovery
reported by the consumers who participated in this study was positively
perceived,
,with most young adults living in a way in which they felt comfortable.
Improvements were reported in each of the key psychosocial domains of
emotional, social, cognitive and physical development. Perceived levels
of
recovery were mostly at a basic level, providing a strong foundation
for
further development and recovery at a later stage. Developing strong
hopes and
dreams for the future further fosters positive steps in the direction
of
recovery. For those consumers who do not reach a level of recovery
within the
program, the alternative is long term psychiatric care and alternative
support
services.
Hopes for the
future
The fourth aim of this study was to explore
the participant’s perceptions of what the future holds for consumers. Consumer hopes for the future largely reflect
the ‘typical Australian dream’: independence, full time employment,
romantic
relationships, later marriage and home ownership . These hopes were
largely
unchanged from those that existed before participants became unwell.
Whilst
these hopes were relatively unchanged, the consumers interviewed in
this study
acknowledged that they may require extra support at times in their
lives in
order to maintain stable mental health if they are to realise these
hopes in
the future. The staff at MASC who participated in this study expressed
support
of these dreams, hoping that consumers receive opportunities free from
stigma,
with a sense of anonymity and independence. Whilst staff appear
supportive,
they are also wary of the reality for consumers who experience frequent
periods
of acute illness requiring future long
term support within intensive psychiatric rehabilitation programs.
Methodological limitations
of the study
Whilst the use of a
qualitative
research paradigm has provided a data set rich in information, these
data are
limited to the specific point in time participants were interviewed and
as such
the context of perceptions are strongly influenced by individuals who
do not
necessarily reflect the views and opinions of existing and previous
members of
the MASC community. The group method of interviewing the participants
who were
also consumers was adopted at the request of participants, and this
raises
questions regarding the validity of reported perceptions. Furthermore
at the
time of the study, the researcher occupied a dual role as both a
student of the
University of Ballarat
and also as a casual employee of
the MASC program. Whilst this served as beneficial as rapport had
already been
established with participants, the dual role may have influenced
responses from
participants and later the interpretation and discussion of results. The personal philosophical commitments of
both the researcher and supervisor to this form of intervention and
evaluation
technique may have potentially influenced the objectivity of data
analysis. The
qualitative method of evaluation used to conduct the research also
limited the
scope of the research project as it proved to be time consuming
limiting its
capacity to include other important stakeholders such as carers in the
interview process.
Recommendations
The present study found the MASC program to
be an effective intervention approach for young adults experiencing
mental
illness. Perceptions of staff and
consumers toward the program were largely positive; however, areas of
program
delivery that could benefit from revision in aid of further
strengthening the
therapeutic impact of the MASC program were also identified. The
following two recommendations
are made, based on the results of this evaluation.
Recommendation 1 - Modification in the
initial stages of entry into the program
and immediately after discharge from acute inpatient hospital
admissions.
Consumers in this study felt particularly
vulnerable during the initial period of entry into the program and
negative
interactions or interventions at this time have the potential to
prolong the
time it takes therapeutic benefits to have an influence. The
interactions and
interventions employed during these stages depend strongly on building
rapport
with consumers. Currently consumers are feeling pushed in a negative
way during
these times due to the emphasis on formal intervention approaches.
Informal
approaches were highlighted as the most beneficial and well-received
interventions during these times. It is recommended on the basis of
this
evaluation, that staff revise current practices during the earlier
stages of
entry into the program and incorporate informal approaches to ensure
consumers
perceive all stages of program participation in a positive light.
Recommendation
2 – Staff support
and professional development
<>It
is
important within such a program not to overlook the
needs of staff to overcome feelings of frustration and complacency. The
results
of this evaluation highlighted a particular need for staff to receive
specialised substance use and dependence training.
Obtaining qualifications in this area may
improve the ability of staff to deal with the issues related to
substance use
and dependence, decreasing frustration levels as a result.
and not the researcher’s
employer. It was also emphasised that any information that the
researcher
gleaned would only be used for the study and not by the program.
Participants
were informed that the only accessible data to any person other then
the
researchers would be in a general format in the final copy of the
thesis or
journal article.
Conclusions
and directions
for future
research
The strength of a qualitative research
project is that it provides a data set that is meaningful and
information-rich.
The present study provides useful data regarding the perceived impact
of
rehabilitation in promoting psychosocial functioning in the lives of
young
adults with a mental illness. In addition, the study has generated a
series of
themes and patterns to be explored in future research. These future
research
directions include (1) determining the prevalence and impact of dual
diagnosis
within psychosocial rehabilitation programs for young adults, (2)
comparing of
the effectiveness of alternative interventions, and, (4)
investigating relationships and transitions
between acute psychiatric services and psychiatric disability
rehabilitation
and support services,and (4) exploring the impact of rural issues and
stigma on
the recovery process for young people who access services in a rural
setting.
<>
References
<>Arnett,
J. (2000). Emerging adulthood: A theory of development from the late
teens
through the twenties. American
Psychologist, 55, 409–480.
Australian
Bureau of Statistics. (1996). 1996 Census
Data. Canberra:
Australian Government
Publishing Service.
Blair,
E., Burton, P., Silburn,
S. & Zubrick,
S. (2000). Mental health disorders in children and young people: scope,
cause
and prevention. Australian and New Zealand
Journal of
Psychiatry, 34,
570-578.
Burnely,
I. (1994). Differential and spatial
aspects of suicide mortality in NSW and Sydney 1980 – 1991. Australian
Journal of Public Health, 18,
293–303.
Cnaan,
R., Blankertz, L., Messinger, K. & Gardner, J. (1988). Psychosocial
rehabilitation: toward a definition. Psychosocial
Rehabilitation Journal, 11, 61- 77.
Centacare
Catholic Diocese of Ballarat Inc & Psychiatric Fellowship Inc.
(1998). Tender Submission: Residential
Rehabilitation Services for Young Adults with a Mental Illness. Ballarat, Victoria:
Department of Human Services.
Davis,
C.,
Martin, G., Kosky, R., & O’Hanlon, A. (2000). Early
Intervention in the Mental Health of Young People. Canberra:
Commonwealth of Australia.
Department
of Human Services. (2003). Psychiatric
Disability Rehabilitation and Support Services: Guidelines for service
delivery.
Melbourne: Victorian
Government Department
of Human Services.
Department
of Infrastructure. (2000). Victoria
in the Future. Melbourne:
Department of Infrastructure.
Drake,
R., McLauglin, P., Pepper, B. & Minkoff, D. (1991). Dual diagnosis
of major
mental illness and substance disorder:
an overview. New Directions for Health,
50, 3–12.
Dye,
J., Schatz,
I.M., Rosenberg, B.A.,
& Coleman, S.T.
(2000). Constant comparative method: A
kaleidoscope of data. The Qualitative
Report, 4, No. 1. Available from: http://www.nova.edu/ssss/QR/QR4-1/dye.html
Flick,
U. (2002). An Introduction to Qualitative
Research. Thousand Oakes: Sage.
Fuller,
A., McGraw, K. & Goodyear, M. (2002). Bungy jumping through life: a
developmental framework for the promotion of resilience. In L. Rowling,
G.
Martin, & C. Walker (Eds.), Mental
Health Promotion, Concepts and Practice (pp. 84-96). Sydney:
McGraw Hill.
Fuller,
A. (1998). From Surviving to Thriving:
Promoting mental health in young people. Melbourne:
Australian Council for
Educational Research.
Geller,
B., Zimmerman, B., Williams, M., Bolhofner, K. & Craney, J. (2001).
Adult
psychosocial outcome of prepubertal major depressive disorder. Journal of the American Academy
of Child and Adolescent Psychiatry, 40, 673 – 677.
Goodrick,
D. (2004). Qualitative research: principles & practice. ACSPRI
Workshop Notes, January 21–25.
Gotlib,
I., Klein, D., Lewinsohn, P.,
Rohde, P. & Seeley, J. (2003). Psychosocial functioning of young
adults who
have experienced and recovered from major depressive disorder during
adolescence. Journal of Abnormal
Psychology, 122, 353–363.
Harrop,
C. & Trower, P. (2003). Why does
Schizophrenia develop at Late Adolescence? London:
Wiley.
Kosky,
R. (1992). Adolescents in custody: a disciplining or disabling
experience. In
R. Kosky, H. Eschenanj, & G.
Kneebone. (Eds). Breaking Out: Challenges
in Adolescent Mental Health in Australia. Canberra:
Australian Government
Publishing Service.
Miles,
M. & Huberman, A. (1994). Qualitative
Data Analysis: An expanded source book (2nd ed.). Thousand
Oaks: Sage.
McLellan,
E., MacQueen, K. & Neidig, J. (2003). Beyond the qualitative
interview:
data preparation and transcription. Field
Methods, 15, 63-84.
McLennan,
W. (1997). Mental health and wellbeing:
profile of adults,
Australia. Canberra:
Australian Bureau of Statistics.
Nemec , P. &
Furlong-Norman, K. (1989). Support for psychiatrically disabled
persons. In M.
Farkas, & W. Anthony. (Eds).
Psychiatric Rehabilitation Programs: Putting Theory Into Practice. Baltimore:
Johns Hopkins University
Press.
Reinherz,
H., Giaconia, R., Carmola, A., Wasserman, M.
& Silverman, A. (1999). Major depression in young adulthood: Risks
and
impairments. Journal of Abnormal
Psychology, 108, 500-510.
Rayner,
G. & Warner, S. (2003). Self-harming
behavior: from lay perceptions to clinical practice. Counselling
Psychology Quarterly, 16, 305–329.
Richmond,
I.
& Foster, J. (2003). Negative attitudes towards people with
co-morbid
mental health and substance misusers problems: An investigation of
mental
health professionals. Journal of Mental
Health, 12, 393-403.
Siegfried,
N. (1998). A review of co morbidity: Major mental illness sand
problematic
substance use. Australian and New Zealand
Journal of
Psychiatry, 32,
107–113.
Thorne,
I. & Davis, D. (2000). Out and About:
Establishment of a Rural Residential Rehabilitation Service for Young
People
with Mental Illness. Ballarat, Victoria:
Department of Human Services.
Patton,
M. (2002). Qualitative Research and
Evaluation Methods (3rd ed.). Thousand Oakes,
CA: Sage.